Consumer Council

Mr Robert Campbell is the managing director of Australian Audit, a specialist audit firm based in Perth. He is a chartered accountant, a graduate of the Australian Institute of Company Directors, a registered company auditor, a registered tax agent and a social worker.

He holds a BSW with Honours and a MSW from the University of New South Wales School of Social Work. He completed the Graduate Course in Accounting at the University of Technology, Sydney and is a member of the professional advisors’ group for the Australian Charities and Not for Profits Commission . He advises on complex charity tax matters.

He had over 25 years leading social welfare and educational organisations in a variety of CEO positions in New South Wales and the Northern Territory before returning to public practice as an auditor. He has served on the boards of charities working in the areas of homelessness, mental health recovery, drug and alcohol addictions and disabilities

At home, Mr Campbell has supported his wife in her recovery from two strokes and deeply appreciates the need for integrated health solutions for stroke survivors.

At 16 weeks pregnant aged 29 and married just 6 months, Elisha had three ischemic strokes over two days. She was initially misdiagnosed as atypical migraine, and was sent home.  The following day she had the third stroke in her brain stem.  This resulted in left sided paralysis and severe acute symptoms, and she was admitted. Treated as migraine for that day and the next, it took until four days after Elisha’s first presentation to be given an MRI and to be diagnosed with stroke. She was then put under the care of the stroke team and things started to improve immediately. 

What followed was rehabilitation focussed on preparing for first time motherhood. Elisha had to learn to walk, cook, and care for herself and to care for the tiny baby that had hung on through the journey too. 

Seven years after her stroke, Elisha was finally able to return to paid employment. She is a registered nurse, originally graduating in 2000. She now works as a Clinical Care Manager at a disability service organisation and is also completing research to inform and reduce the substantial gap that exists in healthcare access for people with a disability. Her advocacy skills are honed from years of nursing practice, and her experience as a stroke survivor makes her passionate about inclusivity and equity for all Australians regardless of demographics, disability or social status. 

Elisha has lived experience of stroke and of many of the challenges that a person may face following a stroke.  She also teaches disability support staff about stroke, first aid and the longer-term implications of working with someone who has survived a stroke.

Tala, from Western Australia, has a passion for advocating for stroke awareness and supporting the Stroke Foundation, stemming from her personal experience of being a stroke survivor. She suffered a cerebellar stroke at the age of 13 however it wasn’t diagnosed until two days later. Through countless hours of rehabilitation over the following two years she was lucky enough to make a full recovery however knows the importance that early detection plays in a stroke survivors’ prognosis. While stroke awareness continues to expand, there is still so much more that can be learnt, particularly in the field of paediatric stroke. 

She is the chairwoman for the Stroke Foundation’s Childhood Stroke Lived Experience Advisory Group which advocates for the childhood stroke community nationwide, having input into the development of projects and activities for stroke survivors and providing guidance to the community. She has also fundraised for the Stroke Foundation through participating in events such as the HBF Run for a Reason and Rottnest Island Channel Swim highlighting her passion for keeping active, something that plays an important role in the prevention of stroke. 

She is a physiotherapist by profession who helps stroke patients through the NDIS with gross motor rehabilitation to achieve their personal goals. She believes as a volunteer for Stroke Foundation, she can provide further input, knowledge, and experience from both ends of the spectrum as both a stroke survivor and a health professional. 

Luckmika is an academic and scholar (former Assoc. Professor) with a multicultural background, who has held senior leadership positions in various academic and corporate institutions. He currently has his own strategy consulting firm and works for a number of clients including foreign governments, NFP and Corporate sector organisations globally. He is also an expert in corporate reporting and is a global authority on Integrated Reporting and Integrated Thinking.

He has experienced a stroke first hand. He is a passionate advocate of mindfulness living.  

Luckmika has a PhD in Governance and Reporting, and a number of other academic achievements. He is an ardent musician (classical piano) and also sings as a baritone in his spare time. He has been an advocate for stroke awareness.

Toni Arfaras was 46 yo when she had her first stroke in 2013. This stroke did not display any of the F.A.S.T (Face.Arms.Speech.Time) signs  and her stroke was diagnosed one week after the onset of vague symptoms. This was then followed by three TIAs over the next two years. Toni was a Primary School teacher at the time of her stroke as well as volunteering in a variety of roles.  While stroke did not impact Toni physically, it has had a huge impact on her life. Toni experiences sensory overload daily, she is unable to go out by herself, no longer able to drive and was assessed as being unable to work.

In 2016, Toni began volunteering with Stroke Foundation as a StrokeSafe Presenter. She was part of the Young Stroke Project’s Lived Experience Working Group and the YSP Steering Committee. She is a member of Living Stroke Guidelines Consumer Panel. Toni has written blogs for the YSP and EnableMe with one piece resulting in her being invited to co-author an editorial for the Australian Occupational Therapy Journal.

Toni was a consumer representative on Safer Care Victoria’s Stroke Clinical Coordinating Committee. She currently holds an appointment with SCVs Culture and Capability Program where she provides consumer representation for their Applied Clinical Governance for Boards training. In 2021 Toni began an appointment as part of the RESET Advisory Group (Resuming Employment after Stroke: Enhancement through Tele-coordination) and since 2020 has been part of the Future Health Today Consumer Advisory Group.

Amy was 32 when she had a stroke in 2013, as a result of an Arteriovenous Malformation, which caused a haemorrhage.

The stroke resulted in Amy being completely paralysed on the right side and she lost her speech. Following a long and committed rehabilitation journey in both the public and private health systems, Amy was able to regain her mobility and independence, however, still suffers from a right side deficit and mild aphasia.

With the help of the NSW Stroke Recovery Association, Amy founded the Port Macquarie Stroke Club in 2018 and continues as President of the club. Amy has been a StrokeSafe Speaker for the Stroke Foundation on the Mid North Coast of NSW since 2020 and regularly provides support to the local health district to meet with recent stroke survivors. 

 Amy has participated in numerous neurological and stroke research projects and trials around the country related to aphasia, fatigue, stress and rehabilitation. Amy also supports universities in the tutoring of their speech pathology students to educate and provide feedback from a client perspective on speech pathology services.

For her services to the Stroke cause and Aphasia awareness, Amy was recognised in NSW Parliament in 2019. Amy has a Bachelor of Commerce in Marketing & Human Resource Management, has a Certificate 3 Allied Health Assistant and a Certified Practicing Accountant.

Letisha Living had a massive ischemic stroke at the age of 35 which impacted her left occipital lobe, brain stem (pons) and bilaterally right-side cerebellum.

The underlying causal factor for her stroke was due to PFO (hole in the heart). Numerous blood clots escaped via the PFO and lodged into multiple lobes in her brain.

Remarkably, Letisha spent 3 weeks in hospital and made an almost full physical recovery. She has hemianopia (neurological vision loss) and hemiparesis on her right hand.

Letisha feels strongly about raising awareness for the “hidden challenges” that come with life after stroke ie. Fatigue, confidence, parenting, independence, mental and emotional wellbeing.

Letisha actively represents the interests of stroke survivors, family members and their support network through her consumer and lived experience engagement roles within the Gold Coast Hospital & Health Service and Queensland Statewide projects where she sits on several committees.

She also partners with researchers to improve treatment and rehabilitation outcomes across Australia.

Letisha is the lead author of Finding Yourself After Stroke and Finding Yourself After A Loved Ones Stroke compilation series.

Letisha is the founder of the Gold Coast Stroke Support Group (working aged) where she hosts in-person and online connection groups.

She was a finalist in the 2023 Improving Life After Stroke Awards.

In 2022 Alison Reidy experienced vague symptoms one month prior to being awoken by a severe headache, later attributed to an ischemic stroke. Symptoms did not follow the F.A.S.T. warning signs and initially only included fatigue, vertigo and nausea. Alison took that day off work to request a medical clearance, and whilst in the waiting room she experienced sudden and severe audio-visual disturbance, partial loss of vision, and loss of balance. She was hospitalised for a fortnight and was permitted no visitors during hospital lockdown. Upon discharge she completed her own NDIS application to obtain ongoing rehabilitation support, and her GP arranged all post-event health check-ups. Whilst she has made great progress, she still experiences ongoing fatigue and sensory overstimulation, and occasional aphasia and mobility issues. Ongoing support and love from her husband and son have been vital to her recovery.

Alison holds a Bachelor of Science (Honours) and works at Charles Darwin University. After identifying a gap in her region, she has established a Darwin social group for stroke survivors and their support networks. Through rediscovering her enjoyment of exercise, Alison joined the Rural Athletics Club as a masters athlete, and occasionally volunteers at her local Parkrun. She has also participated in several clinical trials to assist with research developments.

As a result of her own experience, Alison is keen to help improve the availability and accessibility of ongoing relevant support options to stroke survivors and their support networks, regardless of their location.

Veraina is a Mental Health Coach specialising in Low Intensity Cognitive Behavioural Therapy (CBT) and works in the community mental health sector.

She holds a Graduate Diploma in Health Promotion, a degree in Management Communications and is currently undertaking her Masters in Counselling.  She earned her coaching qualifications with the Institute for Professional Excellence in Coaching (iPEC) in the USA and obtained specialist qualifications with the CBT Institute here in Australia.

Veraina also brings 20 years’ experience working in government & the community sector in public health on initiatives such as suicide prevention, mental health promotion, disability access, women’s health, healthy weight programs and Aboriginal health.

Veraina suffered a stroke at age 36, whilst living in the remote town of Alice Springs in the Northern Territory. As a result of where Veraina lived, she had to travel interstate to access care and advocate for herself and drive her own recovery. The fact that she was young and healthy looking also contributed to delays in being diagnosed.

While living in the USA (2015-2019), Veraina participated in a volunteer program for stroke survivors, supporting people recently admitted to hospital with a stroke.

Since returning home, Veraina has contributed lived experience to research projects looking to improving outcomes for Australians experiencing stroke and the people who care for them.

Veraina currently lives in Canberra.

Dee’s daughter Emma is a survivor of perinatal stroke. Dee, from Victoria, cofounded Little Stroke Warriors. Little Stroke Warriors’ advocacy resulted in the development of the Our Family Stroke Journey resource and the Childhood Stroke Project. Dee is a joint winner of the Stroke Foundation “Improving Life After Stroke” award in 2018 and the Stroke Foundation Presidents Achievement award in 2022.