Stroke survivors’ perspectives: deciding whether to take medications that might increase physical recovery
The aim of this study is to learn what is really important to stroke survivors when making decisions about taking medications that might increase their physical recovery when participating in rehabilitation. The study involves an online survey with a series of questions comparing different medications and asks stroke survivors to decide which option they would prefer to take.
Find out more about the study
Developing Consensus on Physical Activity Measurement Following Stroke
How should we measure physical activity recovery after stroke? We are a group of international researchers with expertise in physical activity after stroke. Our aim is to provide international recommendations for measuring physical activity after stroke. To do this, we need your thoughts and suggestions on how we should measure physical activity and what information is important to you.
Find out more about the study
Rehab Choices: Exploring awareness, barriers and enablers that affect rehabilitation decisions and access to rehabilitative care
Rehabilitation is certainly not a ‘one-size fits all’ situation. Join in one discussion via a zoom videoconference with a small group (90 minutes, with breaks). During the discussions you will be invited to share your experiences and thoughts about rehabilitation options and choices.
Find out more about the study
Smart home support for stroke care
We are seeking people with a history of stroke, people who have supported those living with stroke, and medical professionals to give feedback on a smart home solution to support people living with stroke.
Find out more about the study
Patient perspectives on receiving diagnostic information and its influence on psychological outcomes
This study explores patient experiences of, and preferences for, receiving diagnostic information about a health condition, and aims to improve the diagnostic process for patients. The online survey may take approximately 20 minutes and asks questions about your medical history, how you coped with the news at the time, how you are now, and demographic questions. Participants must be 18 years of age or older, fluent in English, and have been diagnosed with a mental or physical health condition by a health professional.
Find out more about the study
Exploring Telehealth Care Seeking Behaviour Across the Stroke Continuum
StrokeLine is a telehealth service provided by the Stroke Foundation. This research will help us understand the reasons that people who have survived a stroke seek support from StrokeLine and the experience of using telehealth services such as StrokeLine in Australia.
Find out more about the study
Tele-PC Study
People with cardiovascular disease who have received healthcare using telehealth are invited to participate in a brief phone/video interview to discuss their experiences of receiving healthcare via telehealth.
Find out more about the study
Memory-SuSTAIN: Enhancing the effects of post-stroke memory rehabilitation
La Trobe University is looking at ways of regaining memory skills after a stroke, and maintaining them over time. Participants are offered a free memory skills rehabilitation program. Each week for six weeks, a 2-hour group session is held online via Zoom with a qualified neuropsychologist. The next Memory Group Program starts on 14 October 2020, and further planned in 2021.
Find out more about the study
Support After Stroke using group-based classeS: The SASS Study
Researchers from Monash University are looking for volunteer presenters or stroke survivors themselves (where relevant) to share knowledge and guidance principles on relevant topics for participants in The SASS Study. The study aims to test the potential effectiveness of two alternate group-based intervention classes provided for 12 weeks to survivors of stroke living in the community. The presentations focus on lifestyle management strategies for life ‘after stroke’ to support greater self-management and independence. Pre-recording of the presentations will be facilitated online, approximately 15–30 minutes in length and supported by a slide template kit provided by the research team.
Find out more about the study
The Wellbeing Neuro Course: examining the efficacy of an online treatment program for adults with neurological disorders
Macquarie University’s eCentreClinic is looking for adults with an acquired brain injury or stroke to take part in and evaluate a free online course to help Australians with neurological disorders learn to manage stress, frustration and worry, sadness and depression, and day-to-day activities.
Find out more about the study
Enhancing physical activity: exploring referral pathways between general practitioners and exercise physiologists
This project is looking for people who have seen an exercise physiologist to complete an online survey. The research focuses on enhancing physical activity by exploring the perceptions of general practitioners (GPs), exercise physiologists and patients in relation to the outcomes of referral pathways.
Find out more about the study
The acceptability of brain stimulation: a discrete choice experiment
Non-invasive brain stimulation (NIBS) is a treatment where electric or magnetic current is applied to the surface of the head to stimulate the brain. This therapy has potential to assist people who have experienced stroke. While brain stimulation is not currently used in a clinical setting, it is the subject of much research and experimental work. The purpose of this online survey is to gain perspective of brain stimulation therapy from people who have experienced stroke.
Find out more about the study
Technology use acceptability survey for a restorative brain-computer interface designed to improve hand motor functions after a stroke
It is believed that impaired movement is caused by damage in specific parts of the brain, which in turn lead to disconnection in the neural pathways that are in charge of the movement. We have investigated a technique named motor imagery based brain-computer interfacing (MI-BCI) that allows re-routing of the impaired neural pathways caused by stroke. However, to further develop this technology we need to know the features of the interface that are most important for users and the considerations of cost relative to benefit.
Find out more about the study
Treatment for sleep disturbance and fatigue following acquired brain injury
Over half of the stroke population experiences problems with sleep or fatigue. Researchers at the Monash Epworth Rehabilitation Research Centre are trialling two forms of therapy to treat sleep and fatigue problems following stroke: cognitive behaviour therapy (CBT) and health education (INFO) therapy. Participants engage in 8 sessions of therapy with a clinical neuropsychologist. These sessions can be completed in-person for local participants, or via a video conferencing program for interstate or rural participants.
Find out more about the study
Development of a sexuality intervention for stroke survivors and their partners
4 out of 5 Australian stroke survivors do not have the opportunity to discuss sexuality or receive information about sexuality. Sexuality is more than just about 'having sex', it also includes roles and identities, relationships and intimacy. Researchers from The University of Sydney would like to develop an educational package that can be provided to stroke survivors and partners of stroke survivors. The study aims to find out what topics should be included in this package and how it should be delivered. If you choose to participate you will be asked to complete two surveys about what you think is important for sexuality after stroke. Your responses are confidential and you will not be asked to share any information about your own experiences of sexuality.
Find out more about the study
Join the Communication Research Registry
The Communication Research Registry is a national register of people who would like to be involved in communication research. This includes research that looks into speech and language difficulties post stroke. People with communication difficulties, their family and friends and members of the public are invited to join.
Find out more about the Communication Research Registry
Disclaimer
Please note the following disclaimer applies to all research projects listed on this page:
The Stroke Foundation recognises the value of all levels of research and the welfare and experiences of those affected. The Stroke Foundation is not responsible for, and does not endorse, any research project, opportunity, or other type of project listed. Reasonable attempts have been made to ensure projects listed have appropriate approval from a recognised body. Participants are responsible for satisfying themselves that appropriate approval procedures have been met before taking part. Participants are advised to read the participant information sheet that the researcher will provide to you. If you do agree to participate and/or you have any concerns regarding the project, these should be directed to the researcher or other contacts on the participant information sheet.
Stroke survivors’ perspectives: deciding whether to take medications that might increase physical recovery
The aim of this study is to learn what is really important to stroke survivors when making decisions about taking medications that might increase their physical recovery when participating in rehabilitation. The study involves an online survey with a series of questions comparing different medications and asks stroke survivors to decide which option they would prefer to take.
Find out more about the study
Developing Consensus on Physical Activity Measurement Following Stroke
How should we measure physical activity recovery after stroke? We are a group of international researchers with expertise in physical activity after stroke. Our aim is to provide international recommendations for measuring physical activity after stroke. To do this, we need your thoughts and suggestions on how we should measure physical activity and what information is important to you.
Find out more about the study
Rehab Choices: Exploring awareness, barriers and enablers that affect rehabilitation decisions and access to rehabilitative care
Rehabilitation is certainly not a ‘one-size fits all’ situation. Join in one discussion via a zoom videoconference with a small group (90 minutes, with breaks). During the discussions you will be invited to share your experiences and thoughts about rehabilitation options and choices.
Find out more about the study
Smart home support for stroke care
We are seeking people with a history of stroke, people who have supported those living with stroke, and medical professionals to give feedback on a smart home solution to support people living with stroke.
Find out more about the study
Patient perspectives on receiving diagnostic information and its influence on psychological outcomes
This study explores patient experiences of, and preferences for, receiving diagnostic information about a health condition, and aims to improve the diagnostic process for patients. The online survey may take approximately 20 minutes and asks questions about your medical history, how you coped with the news at the time, how you are now, and demographic questions. Participants must be 18 years of age or older, fluent in English, and have been diagnosed with a mental or physical health condition by a health professional.
Find out more about the study
Exploring Telehealth Care Seeking Behaviour Across the Stroke Continuum
StrokeLine is a telehealth service provided by the Stroke Foundation. This research will help us understand the reasons that people who have survived a stroke seek support from StrokeLine and the experience of using telehealth services such as StrokeLine in Australia.
Find out more about the study
Tele-PC Study
People with cardiovascular disease who have received healthcare using telehealth are invited to participate in a brief phone/video interview to discuss their experiences of receiving healthcare via telehealth.
Find out more about the study
Memory-SuSTAIN: Enhancing the effects of post-stroke memory rehabilitation
La Trobe University is looking at ways of regaining memory skills after a stroke, and maintaining them over time. Participants are offered a free memory skills rehabilitation program. Each week for six weeks, a 2-hour group session is held online via Zoom with a qualified neuropsychologist. The next Memory Group Program starts on 14 October 2020, and further planned in 2021.
Find out more about the study
Support After Stroke using group-based classeS: The SASS Study
Researchers from Monash University are looking for volunteer presenters or stroke survivors themselves (where relevant) to share knowledge and guidance principles on relevant topics for participants in The SASS Study. The study aims to test the potential effectiveness of two alternate group-based intervention classes provided for 12 weeks to survivors of stroke living in the community. The presentations focus on lifestyle management strategies for life ‘after stroke’ to support greater self-management and independence. Pre-recording of the presentations will be facilitated online, approximately 15–30 minutes in length and supported by a slide template kit provided by the research team.
Find out more about the study
The Wellbeing Neuro Course: examining the efficacy of an online treatment program for adults with neurological disorders
Macquarie University’s eCentreClinic is looking for adults with an acquired brain injury or stroke to take part in and evaluate a free online course to help Australians with neurological disorders learn to manage stress, frustration and worry, sadness and depression, and day-to-day activities.
Find out more about the study
Enhancing physical activity: exploring referral pathways between general practitioners and exercise physiologists
This project is looking for people who have seen an exercise physiologist to complete an online survey. The research focuses on enhancing physical activity by exploring the perceptions of general practitioners (GPs), exercise physiologists and patients in relation to the outcomes of referral pathways.
Find out more about the study
The acceptability of brain stimulation: a discrete choice experiment
Non-invasive brain stimulation (NIBS) is a treatment where electric or magnetic current is applied to the surface of the head to stimulate the brain. This therapy has potential to assist people who have experienced stroke. While brain stimulation is not currently used in a clinical setting, it is the subject of much research and experimental work. The purpose of this online survey is to gain perspective of brain stimulation therapy from people who have experienced stroke.
Find out more about the study
Technology use acceptability survey for a restorative brain-computer interface designed to improve hand motor functions after a stroke
It is believed that impaired movement is caused by damage in specific parts of the brain, which in turn lead to disconnection in the neural pathways that are in charge of the movement. We have investigated a technique named motor imagery based brain-computer interfacing (MI-BCI) that allows re-routing of the impaired neural pathways caused by stroke. However, to further develop this technology we need to know the features of the interface that are most important for users and the considerations of cost relative to benefit.
Find out more about the study
Treatment for sleep disturbance and fatigue following acquired brain injury
Over half of the stroke population experiences problems with sleep or fatigue. Researchers at the Monash Epworth Rehabilitation Research Centre are trialling two forms of therapy to treat sleep and fatigue problems following stroke: cognitive behaviour therapy (CBT) and health education (INFO) therapy. Participants engage in 8 sessions of therapy with a clinical neuropsychologist. These sessions can be completed in-person for local participants, or via a video conferencing program for interstate or rural participants.
Find out more about the study
Development of a sexuality intervention for stroke survivors and their partners
4 out of 5 Australian stroke survivors do not have the opportunity to discuss sexuality or receive information about sexuality. Sexuality is more than just about 'having sex', it also includes roles and identities, relationships and intimacy. Researchers from The University of Sydney would like to develop an educational package that can be provided to stroke survivors and partners of stroke survivors. The study aims to find out what topics should be included in this package and how it should be delivered. If you choose to participate you will be asked to complete two surveys about what you think is important for sexuality after stroke. Your responses are confidential and you will not be asked to share any information about your own experiences of sexuality.
Find out more about the study
Join the Communication Research Registry
The Communication Research Registry is a national register of people who would like to be involved in communication research. This includes research that looks into speech and language difficulties post stroke. People with communication difficulties, their family and friends and members of the public are invited to join.
Find out more about the Communication Research Registry
Disclaimer
Please note the following disclaimer applies to all research projects listed on this page:
The Stroke Foundation recognises the value of all levels of research and the welfare and experiences of those affected. The Stroke Foundation is not responsible for, and does not endorse, any research project, opportunity, or other type of project listed. Reasonable attempts have been made to ensure projects listed have appropriate approval from a recognised body. Participants are responsible for satisfying themselves that appropriate approval procedures have been met before taking part. Participants are advised to read the participant information sheet that the researcher will provide to you. If you do agree to participate and/or you have any concerns regarding the project, these should be directed to the researcher or other contacts on the participant information sheet.