Make an informed decision by reading Deciding whether to participate in research: A community resource for Australians who live with a disability, produced by The Hopkins Centre and AHRECS.
Please visit our Request for research participants page for more information.
RESET (Resuming Employment after Stroke - Enhancement through Telecoordination) Advisory Network
RESET has been developed as a coordination and support service for stroke survivors wishing to return to work. The research team are forming an Advisory Network whose experiences with stroke and/or returning to work after injury or illness, will hopefully provide valuable information that can help ensure that the RESET service is suitable for stroke survivors throughout Australia.
Find out more about the study
Multi-Care: Empowering carers of people with multimorbidity as partners in chronic disease care
This project aims to explore the experiences and needs of carers of people with two or more chronic health conditions (multimorbidity) through qualitative interviews with carers and patients. It is hoped this research will lead to the development of support and empowerment resources for carers, as well as training for health professionals. Participation of patients and carers involves completing a questionnaire and a one-on-one telephone interview. In total, participation will take 60–80 minutes, depending on the extent of the interview.
Virtual reality art making tool for people with stroke
Researchers from the Computer Science Department at the University of Auckland are currently designing a virtual reality art tool and making virtual reality art accessible to people with impairments. They would like to obtain first-impression feedback from a wider range of potential users on the usability of their virtual art tool. They are inviting people aged 16 and above with physical and/or neurological impairments, especially those with stroke, as well as healthy people without impairments, to participate in their online survey.
This study aims to explore the current dietary intake and eating patterns of stroke survivors and to understand the factors affecting their food choices. We will use the data collected to inform the development of a diet program to help stroke survivors eat a healthier diet. Stroke/TIA survivors will be invited to complete two online surveys, with some individual interviews with people who indicate that they would like to participate further.
FoCCuS4HEART: Female Carers Co-produce Support 4 Heart and Emotional health to Address Risk facTors
Phase 1: a survey of the health behaviours and emotional health among female carers of stroke survivors. Researchers from the University of Newcastle are conducting the FoCCuS4HEART project, which seeks to work with informal female carers of stroke survivors to develop strategies and tools to support carers to self-manage their emotional and physical health. If you’re a woman who provides care or has provided care to someone who has had a stroke, you can help by sharing your experiences in our online survey.
Researchers from La Trobe University in Melbourne are are asking people who have had an acquired brain injury (ABI), including stroke, TBI, hypoxic brain injury, encephalitis, etc., and carers of individuals with ABI to complete a survey exploring how the pandemic has affected your health, mood, relationships, work, general behaviour, and rehabilitation and recovery from ABI. You will also be able to indicate whether you are interested in participating in a follow-up interview where the team will ask you further questions about your experience of the pandemic and lockdowns.
Co-design of a personalised physical activity intervention for stroke survivors
The aim of this study is to design a pathway to personalised, engaging and targeted physical activity programs for stroke survivors. Researchers working together with stroke survivors, carers and clinicians will “co-design” a new physical activity intervention, using an integrated knowledge translation approach, that will be tested in a future trial. Participants will be asked to join 1 or 2 workshops, either in person, or from home via phone or video.
This research involves a 10–15 minute online questionnaire about current speech-language therapy practices for slurring of speech (dysarthria). The researchers are also interested in understanding whether persons with slurred speech would be interested in participating in research involving new treatment opportunities.
Evaluating Antidepressants for emotionaliSm after strokE – consumer/lived experience group
The George Institute in Sydney, Australia and the University of East Anglia in the UK are planning a study to test if an antidepressant (a drug normally used to treat depression) would be an effective treatment for post-stroke emotionalism. Emotionalism means that you cry, or laugh, without warning, inappropriately, and you cannot control it. This can negatively affect people's lives. As part of planning for this study, the researchers want to try and find out what members of the public, people with stroke, their family and/or carers think about the idea and their plans on how to do the research, to make sure they are doing good, useful research.
Find out more about the study
Looking for stroke caregivers to participate in an online survey
We understand the challenges you face as a caregiver to a person with stroke, and we would like to help support you in your everyday life. We hope to achieve this by understanding your needs in stroke care using a survey of approximately 30 mins. The data collected is then used to develop strategies that researchers, medical professionals and engineers can use to develop the best methods to support you. The study would be conducted online.
Evaluating attitudes of older adults to sexuality and the relevant supports they need
This research project is evaluating the attitudes, behaviours and perspectives of older adults towards sexuality, to understand the impacts of the ageing experience on sexuality and what community and health supports may be necessary in this area. Sexuality in this study is referring to your sexual health, sexual activity and intimate relationships. The study involves an anonymous online survey that will take approximately 20–30 minutes.
Perispinal Etanercept to improve Stroke Outcomes (PESTO) clinical trial
Funded by the Federal Government through the Medical Research Future Fund, Australia’s first multi-centred international clinical trial of perispinal etanercept in chronic stroke is actively recruiting participants. This trial seeks to determine if perispinal etanercept improves quality of life in working age survivors of stroke with a moderate to severe disability, and if repeated treatments lead to more improvement compared to one treatment. Australian sites are located in Melbourne, Victoria. We understand that interstate travel is particularly challenging at the moment, and we take the time to ensure that anyone who is interested and eligible makes an informed decision about participating.
This study is about the impacts of swallowing difficulties (dysphagia) on quality of life, participation, and inclusion. We are also looking at the use of 3D food printing to create visually appealing texture-modified foods. There are four parts to the study, including looking at records of mealtimes, observing your swallowing, interviewing you about how your swallowing difficulties impact your quality of life, and demonstrating 3D food printing. All parts of the study can be done online via Zoom.
The aim of this study is to learn what is really important to stroke survivors when making decisions about taking medications that might increase their physical recovery when participating in rehabilitation. The study involves an online survey with a series of questions comparing different medications and asks stroke survivors to decide which option they would prefer to take.
Exploring Telehealth Care Seeking Behaviour Across the Stroke Continuum
StrokeLine is a telehealth service provided by the Stroke Foundation. This research will help us understand the reasons that people who have survived a stroke seek support from StrokeLine and the experience of using telehealth services such as StrokeLine in Australia.
People with cardiovascular disease who have received healthcare using telehealth are invited to participate in a brief phone/video interview to discuss their experiences of receiving healthcare via telehealth.
Support After Stroke using group-based classeS: The SASS Study
Researchers from Monash University are looking for volunteer presenters or stroke survivors themselves (where relevant) to share knowledge and guidance principles on relevant topics for participants in The SASS Study. The study aims to test the potential effectiveness of two alternate group-based intervention classes provided for 12 weeks to survivors of stroke living in the community. The presentations focus on lifestyle management strategies for life ‘after stroke’ to support greater self-management and independence. Pre-recording of the presentations will be facilitated online, approximately 15–30 minutes in length and supported by a slide template kit provided by the research team.
Macquarie University’s eCentreClinic is looking for adults with an acquired brain injury or stroke to take part in and evaluate a free online course to help Australians with neurological disorders learn to manage stress, frustration and worry, sadness and depression, and day-to-day activities.
This project is looking for people who have seen an exercise physiologist to complete an online survey. The research focuses on enhancing physical activity by exploring the perceptions of general practitioners (GPs), exercise physiologists and patients in relation to the outcomes of referral pathways.
It is believed that impaired movement is caused by damage in specific parts of the brain, which in turn lead to disconnection in the neural pathways that are in charge of the movement. We have investigated a technique named motor imagery based brain-computer interfacing (MI-BCI) that allows re-routing of the impaired neural pathways caused by stroke. However, to further develop this technology we need to know the features of the interface that are most important for users and the considerations of cost relative to benefit.
Treatment for sleep disturbance and fatigue following acquired brain injury
Over half of the stroke population experiences problems with sleep or fatigue. Researchers at the Monash Epworth Rehabilitation Research Centre are trialling two forms of therapy to treat sleep and fatigue problems following stroke: cognitive behaviour therapy (CBT) and health education (INFO) therapy. Participants engage in 8 sessions of therapy with a clinical neuropsychologist. These sessions can be completed in-person for local participants, or via a video conferencing program for interstate or rural participants.
Development of a sexuality intervention for stroke survivors and their partners
4 out of 5 Australian stroke survivors do not have the opportunity to discuss sexuality or receive information about sexuality. Sexuality is more than just about 'having sex', it also includes roles and identities, relationships and intimacy. Researchers from The University of Sydney would like to develop an educational package that can be provided to stroke survivors and partners of stroke survivors. The study aims to find out what topics should be included in this package and how it should be delivered. If you choose to participate you will be asked to complete two surveys about what you think is important for sexuality after stroke. Your responses are confidential and you will not be asked to share any information about your own experiences of sexuality.
Join the Communication Research Registry
The Communication Research Registry is a national register of people who would like to be involved in communication research. This includes research that looks into speech and language difficulties post stroke. People with communication difficulties, their family and friends and members of the public are invited to join.
Find out more about the Communication Research Registry
Disclaimer
Please note the following disclaimer applies to all research projects listed on this page:
The Stroke Foundation recognises the value of all levels of research and the welfare and experiences of those affected. The Stroke Foundation is not responsible for, and does not endorse, any research project, opportunity, or other type of project listed. Reasonable attempts have been made to ensure projects listed have appropriate approval from a recognised body. Participants are responsible for satisfying themselves that appropriate approval procedures have been met before taking part. Participants are advised to read the participant information sheet that the researcher will provide to you. If you do agree to participate and/or you have any concerns regarding the project, these should be directed to the researcher or other contacts on the participant information sheet.
RESET (Resuming Employment after Stroke - Enhancement through Telecoordination) Advisory Network
RESET has been developed as a coordination and support service for stroke survivors wishing to return to work. The research team are forming an Advisory Network whose experiences with stroke and/or returning to work after injury or illness, will hopefully provide valuable information that can help ensure that the RESET service is suitable for stroke survivors throughout Australia.
Find out more about the study
Multi-Care: Empowering carers of people with multimorbidity as partners in chronic disease care
This project aims to explore the experiences and needs of carers of people with two or more chronic health conditions (multimorbidity) through qualitative interviews with carers and patients. It is hoped this research will lead to the development of support and empowerment resources for carers, as well as training for health professionals. Participation of patients and carers involves completing a questionnaire and a one-on-one telephone interview. In total, participation will take 60–80 minutes, depending on the extent of the interview.
Virtual reality art making tool for people with stroke
Researchers from the Computer Science Department at the University of Auckland are currently designing a virtual reality art tool and making virtual reality art accessible to people with impairments. They would like to obtain first-impression feedback from a wider range of potential users on the usability of their virtual art tool. They are inviting people aged 16 and above with physical and/or neurological impairments, especially those with stroke, as well as healthy people without impairments, to participate in their online survey.
This study aims to explore the current dietary intake and eating patterns of stroke survivors and to understand the factors affecting their food choices. We will use the data collected to inform the development of a diet program to help stroke survivors eat a healthier diet. Stroke/TIA survivors will be invited to complete two online surveys, with some individual interviews with people who indicate that they would like to participate further.
FoCCuS4HEART: Female Carers Co-produce Support 4 Heart and Emotional health to Address Risk facTors
Phase 1: a survey of the health behaviours and emotional health among female carers of stroke survivors. Researchers from the University of Newcastle are conducting the FoCCuS4HEART project, which seeks to work with informal female carers of stroke survivors to develop strategies and tools to support carers to self-manage their emotional and physical health. If you’re a woman who provides care or has provided care to someone who has had a stroke, you can help by sharing your experiences in our online survey.
Researchers from La Trobe University in Melbourne are are asking people who have had an acquired brain injury (ABI), including stroke, TBI, hypoxic brain injury, encephalitis, etc., and carers of individuals with ABI to complete a survey exploring how the pandemic has affected your health, mood, relationships, work, general behaviour, and rehabilitation and recovery from ABI. You will also be able to indicate whether you are interested in participating in a follow-up interview where the team will ask you further questions about your experience of the pandemic and lockdowns.
Co-design of a personalised physical activity intervention for stroke survivors
The aim of this study is to design a pathway to personalised, engaging and targeted physical activity programs for stroke survivors. Researchers working together with stroke survivors, carers and clinicians will “co-design” a new physical activity intervention, using an integrated knowledge translation approach, that will be tested in a future trial. Participants will be asked to join 1 or 2 workshops, either in person, or from home via phone or video.
This research involves a 10–15 minute online questionnaire about current speech-language therapy practices for slurring of speech (dysarthria). The researchers are also interested in understanding whether persons with slurred speech would be interested in participating in research involving new treatment opportunities.
Evaluating Antidepressants for emotionaliSm after strokE – consumer/lived experience group
The George Institute in Sydney, Australia and the University of East Anglia in the UK are planning a study to test if an antidepressant (a drug normally used to treat depression) would be an effective treatment for post-stroke emotionalism. Emotionalism means that you cry, or laugh, without warning, inappropriately, and you cannot control it. This can negatively affect people's lives. As part of planning for this study, the researchers want to try and find out what members of the public, people with stroke, their family and/or carers think about the idea and their plans on how to do the research, to make sure they are doing good, useful research.
Find out more about the study
Looking for stroke caregivers to participate in an online survey
We understand the challenges you face as a caregiver to a person with stroke, and we would like to help support you in your everyday life. We hope to achieve this by understanding your needs in stroke care using a survey of approximately 30 mins. The data collected is then used to develop strategies that researchers, medical professionals and engineers can use to develop the best methods to support you. The study would be conducted online.
Evaluating attitudes of older adults to sexuality and the relevant supports they need
This research project is evaluating the attitudes, behaviours and perspectives of older adults towards sexuality, to understand the impacts of the ageing experience on sexuality and what community and health supports may be necessary in this area. Sexuality in this study is referring to your sexual health, sexual activity and intimate relationships. The study involves an anonymous online survey that will take approximately 20–30 minutes.
Perispinal Etanercept to improve Stroke Outcomes (PESTO) clinical trial
Funded by the Federal Government through the Medical Research Future Fund, Australia’s first multi-centred international clinical trial of perispinal etanercept in chronic stroke is actively recruiting participants. This trial seeks to determine if perispinal etanercept improves quality of life in working age survivors of stroke with a moderate to severe disability, and if repeated treatments lead to more improvement compared to one treatment. Australian sites are located in Melbourne, Victoria. We understand that interstate travel is particularly challenging at the moment, and we take the time to ensure that anyone who is interested and eligible makes an informed decision about participating.
This study is about the impacts of swallowing difficulties (dysphagia) on quality of life, participation, and inclusion. We are also looking at the use of 3D food printing to create visually appealing texture-modified foods. There are four parts to the study, including looking at records of mealtimes, observing your swallowing, interviewing you about how your swallowing difficulties impact your quality of life, and demonstrating 3D food printing. All parts of the study can be done online via Zoom.
The aim of this study is to learn what is really important to stroke survivors when making decisions about taking medications that might increase their physical recovery when participating in rehabilitation. The study involves an online survey with a series of questions comparing different medications and asks stroke survivors to decide which option they would prefer to take.
Exploring Telehealth Care Seeking Behaviour Across the Stroke Continuum
StrokeLine is a telehealth service provided by the Stroke Foundation. This research will help us understand the reasons that people who have survived a stroke seek support from StrokeLine and the experience of using telehealth services such as StrokeLine in Australia.
People with cardiovascular disease who have received healthcare using telehealth are invited to participate in a brief phone/video interview to discuss their experiences of receiving healthcare via telehealth.
Support After Stroke using group-based classeS: The SASS Study
Researchers from Monash University are looking for volunteer presenters or stroke survivors themselves (where relevant) to share knowledge and guidance principles on relevant topics for participants in The SASS Study. The study aims to test the potential effectiveness of two alternate group-based intervention classes provided for 12 weeks to survivors of stroke living in the community. The presentations focus on lifestyle management strategies for life ‘after stroke’ to support greater self-management and independence. Pre-recording of the presentations will be facilitated online, approximately 15–30 minutes in length and supported by a slide template kit provided by the research team.
Macquarie University’s eCentreClinic is looking for adults with an acquired brain injury or stroke to take part in and evaluate a free online course to help Australians with neurological disorders learn to manage stress, frustration and worry, sadness and depression, and day-to-day activities.
This project is looking for people who have seen an exercise physiologist to complete an online survey. The research focuses on enhancing physical activity by exploring the perceptions of general practitioners (GPs), exercise physiologists and patients in relation to the outcomes of referral pathways.
It is believed that impaired movement is caused by damage in specific parts of the brain, which in turn lead to disconnection in the neural pathways that are in charge of the movement. We have investigated a technique named motor imagery based brain-computer interfacing (MI-BCI) that allows re-routing of the impaired neural pathways caused by stroke. However, to further develop this technology we need to know the features of the interface that are most important for users and the considerations of cost relative to benefit.
Treatment for sleep disturbance and fatigue following acquired brain injury
Over half of the stroke population experiences problems with sleep or fatigue. Researchers at the Monash Epworth Rehabilitation Research Centre are trialling two forms of therapy to treat sleep and fatigue problems following stroke: cognitive behaviour therapy (CBT) and health education (INFO) therapy. Participants engage in 8 sessions of therapy with a clinical neuropsychologist. These sessions can be completed in-person for local participants, or via a video conferencing program for interstate or rural participants.
Development of a sexuality intervention for stroke survivors and their partners
4 out of 5 Australian stroke survivors do not have the opportunity to discuss sexuality or receive information about sexuality. Sexuality is more than just about 'having sex', it also includes roles and identities, relationships and intimacy. Researchers from The University of Sydney would like to develop an educational package that can be provided to stroke survivors and partners of stroke survivors. The study aims to find out what topics should be included in this package and how it should be delivered. If you choose to participate you will be asked to complete two surveys about what you think is important for sexuality after stroke. Your responses are confidential and you will not be asked to share any information about your own experiences of sexuality.
Join the Communication Research Registry
The Communication Research Registry is a national register of people who would like to be involved in communication research. This includes research that looks into speech and language difficulties post stroke. People with communication difficulties, their family and friends and members of the public are invited to join.
Find out more about the Communication Research Registry
Disclaimer
Please note the following disclaimer applies to all research projects listed on this page:
The Stroke Foundation recognises the value of all levels of research and the welfare and experiences of those affected. The Stroke Foundation is not responsible for, and does not endorse, any research project, opportunity, or other type of project listed. Reasonable attempts have been made to ensure projects listed have appropriate approval from a recognised body. Participants are responsible for satisfying themselves that appropriate approval procedures have been met before taking part. Participants are advised to read the participant information sheet that the researcher will provide to you. If you do agree to participate and/or you have any concerns regarding the project, these should be directed to the researcher or other contacts on the participant information sheet.
The Falls After Stroke Trial (FAST) is testing a novel at-home exercise and safety training program. It aims to reduce your risk of falling and increase your ability to do daily activities. The research team seeks people in Canberra or Sydney who have had a stroke in the last 5 years, are aged over 50 years and can walk 10 metres (with or without a walking aid). The intervention involves an exercise program which requires no extra time during the day.
Disclaimer
Please note the following disclaimer applies to all research projects listed on this page:
The National Stroke Foundation recognises the value of all levels of research and the welfare and experiences of those affected. The National Stroke Foundation is not responsible for, and does not endorse, any research project, opportunity, or other type of project listed. Reasonable attempts have been made to ensure projects listed have appropriate approval from a recognised body. Participants are responsible for satisfying themselves that appropriate approval procedures have been met before taking part. Participants are advised to read the participant information sheet that the researcher will provide to you. If you do agree to participate and/or you have any concerns regarding the project, these should be directed to the researcher or other contacts on the participant information sheet.
The Falls After Stroke Trial (FAST) is testing a novel at-home exercise and safety training program. It aims to reduce your risk of falling and increase your ability to do daily activities. The research team seeks people in Canberra or Sydney who have had a stroke in the last 5 years, are aged over 50 years and can walk 10 metres (with or without a walking aid). The intervention involves an exercise program which requires no extra time during the day.
Disclaimer
Please note the following disclaimer applies to all research projects listed on this page:
The National Stroke Foundation recognises the value of all levels of research and the welfare and experiences of those affected. The National Stroke Foundation is not responsible for, and does not endorse, any research project, opportunity, or other type of project listed. Reasonable attempts have been made to ensure projects listed have appropriate approval from a recognised body. Participants are responsible for satisfying themselves that appropriate approval procedures have been met before taking part. Participants are advised to read the participant information sheet that the researcher will provide to you. If you do agree to participate and/or you have any concerns regarding the project, these should be directed to the researcher or other contacts on the participant information sheet.
MIDAS 2: Modafinil In Debilitating Fatigue After Stroke 2
This study is recruiting community-dwelling stroke survivors who are experiencing persistent and non-resolving fatigue 3 or more months after their stroke, to test whether modafinil significantly improves participant quality of life compared to placebo. Participants will be randomised to either modafinil (200 mg daily) or an identical placebo for 56 days.
We are recruiting people with stroke who would like to participate in a therapy program that focuses on touch sensation and use of the hand. Potential participants should be adults (over 18 years of age) who have had a stroke and have altered feeling in their hand. Participants in the study will be asked to attend assessment and therapy appointments 14 times over a period of six months.
We are looking for feedback on our research from younger people (<65 years old) in the greater Sydney region who are living in residential aged care, their carers, and their families. The study aims to examine the pathways younger people take into residential aged care, as well as their health outcomes living in residential aged care. Participants will talk to a researcher and give feedback on our research plan, and give advice on spreading research findings. There will be 8 sessions over 3 years, with each session between half an hour to an hour in length.
The Falls After Stroke Trial (FAST) is testing a novel at-home exercise and safety training program. It aims to reduce your risk of falling and increase your ability to do daily activities. The research team seeks people in Sydney or Canberra who have had a stroke in the last 5 years, are aged over 50 years and can walk 10 metres (with or without a walking aid). The intervention involves an exercise program which requires no extra time during the day.
Shoulder pain is a very common and troublesome complication after stroke. One of the factors most frequently associated with shoulder pain is spasticity. This focal spasticity (muscle tightness or stiffness) can also lead to restricted use of the arm, interfering with activities of daily living. The primary purpose of this study is to better understand whether botulinum toxin and physiotherapy can be used as a treatment for muscle stiffness and tightness in the shoulder after stroke in patients who have shoulder pain.
Improving arm function after stroke using task-specific training
Many people who experience a stroke have difficulty moving their arm and hand, and research has shown that people can still have non-functional arms at 6 months after stroke. Our researchers are conducting a multi-centre, randomised controlled trial to test whether a programme of specific training exercises is more effective than usual care. We are seeking people with stroke who have difficulty using their arm and/or hand to take part in this study. The study will involve assessments of arm and hand function before and after a 6 week period, with a follow-up assessment after 6 months.
Disclaimer
Please note the following disclaimer applies to all research projects listed on this page:
The National Stroke Foundation recognises the value of all levels of research and the welfare and experiences of those affected. The National Stroke Foundation is not responsible for, and does not endorse, any research project, opportunity, or other type of project listed. Reasonable attempts have been made to ensure projects listed have appropriate approval from a recognised body. Participants are responsible for satisfying themselves that appropriate approval procedures have been met before taking part. Participants are advised to read the participant information sheet that the researcher will provide to you. If you do agree to participate and/or you have any concerns regarding the project, these should be directed to the researcher or other contacts on the participant information sheet.
MIDAS 2: Modafinil In Debilitating Fatigue After Stroke 2
This study is recruiting community-dwelling stroke survivors who are experiencing persistent and non-resolving fatigue 3 or more months after their stroke, to test whether modafinil significantly improves participant quality of life compared to placebo. Participants will be randomised to either modafinil (200 mg daily) or an identical placebo for 56 days.
We are recruiting people with stroke who would like to participate in a therapy program that focuses on touch sensation and use of the hand. Potential participants should be adults (over 18 years of age) who have had a stroke and have altered feeling in their hand. Participants in the study will be asked to attend assessment and therapy appointments 14 times over a period of six months.
We are looking for feedback on our research from younger people (<65 years old) in the greater Sydney region who are living in residential aged care, their carers, and their families. The study aims to examine the pathways younger people take into residential aged care, as well as their health outcomes living in residential aged care. Participants will talk to a researcher and give feedback on our research plan, and give advice on spreading research findings. There will be 8 sessions over 3 years, with each session between half an hour to an hour in length.
The Falls After Stroke Trial (FAST) is testing a novel at-home exercise and safety training program. It aims to reduce your risk of falling and increase your ability to do daily activities. The research team seeks people in Sydney or Canberra who have had a stroke in the last 5 years, are aged over 50 years and can walk 10 metres (with or without a walking aid). The intervention involves an exercise program which requires no extra time during the day.
Shoulder pain is a very common and troublesome complication after stroke. One of the factors most frequently associated with shoulder pain is spasticity. This focal spasticity (muscle tightness or stiffness) can also lead to restricted use of the arm, interfering with activities of daily living. The primary purpose of this study is to better understand whether botulinum toxin and physiotherapy can be used as a treatment for muscle stiffness and tightness in the shoulder after stroke in patients who have shoulder pain.
Improving arm function after stroke using task-specific training
Many people who experience a stroke have difficulty moving their arm and hand, and research has shown that people can still have non-functional arms at 6 months after stroke. Our researchers are conducting a multi-centre, randomised controlled trial to test whether a programme of specific training exercises is more effective than usual care. We are seeking people with stroke who have difficulty using their arm and/or hand to take part in this study. The study will involve assessments of arm and hand function before and after a 6 week period, with a follow-up assessment after 6 months.
Disclaimer
Please note the following disclaimer applies to all research projects listed on this page:
The National Stroke Foundation recognises the value of all levels of research and the welfare and experiences of those affected. The National Stroke Foundation is not responsible for, and does not endorse, any research project, opportunity, or other type of project listed. Reasonable attempts have been made to ensure projects listed have appropriate approval from a recognised body. Participants are responsible for satisfying themselves that appropriate approval procedures have been met before taking part. Participants are advised to read the participant information sheet that the researcher will provide to you. If you do agree to participate and/or you have any concerns regarding the project, these should be directed to the researcher or other contacts on the participant information sheet.
There are currently no research projects listed for the Northern Territory. Please check the National tab for projects recruiting Australia-wide.
Disclaimer
Please note the following disclaimer applies to all research projects listed on this page:
The National Stroke Foundation recognises the value of all levels of research and the welfare and experiences of those affected. The National Stroke Foundation is not responsible for, and does not endorse, any research project, opportunity, or other type of project listed. Reasonable attempts have been made to ensure projects listed have appropriate approval from a recognised body. Participants are responsible for satisfying themselves that appropriate approval procedures have been met before taking part. Participants are advised to read the participant information sheet that the researcher will provide to you. If you do agree to participate and/or you have any concerns regarding the project, these should be directed to the researcher or other contacts on the participant information sheet.
There are currently no research projects listed for the Northern Territory. Please check the National tab for projects recruiting Australia-wide.
Disclaimer
Please note the following disclaimer applies to all research projects listed on this page:
The National Stroke Foundation recognises the value of all levels of research and the welfare and experiences of those affected. The National Stroke Foundation is not responsible for, and does not endorse, any research project, opportunity, or other type of project listed. Reasonable attempts have been made to ensure projects listed have appropriate approval from a recognised body. Participants are responsible for satisfying themselves that appropriate approval procedures have been met before taking part. Participants are advised to read the participant information sheet that the researcher will provide to you. If you do agree to participate and/or you have any concerns regarding the project, these should be directed to the researcher or other contacts on the participant information sheet.
Illness perceptions refer to a person's understanding, and beliefs regarding their condition and treatment. The research team are looking for people who have had a stroke over six months ago and live in the community to join the study. Suitable participants will be required to come to ACU health clinics for about 30 minutes to complete a short survey and two brief questionnaires to complete the screening process. They will then be provided an activity log in which they will be asked to record their exercise or rehabilitation activities on a daily basis, over a four-week period.
Find out more about the study
Disclaimer
Please note the following disclaimer applies to all research projects listed on this page:
The Stroke Foundation recognises the value of all levels of research and the welfare and experiences of those affected. The Stroke Foundation is not responsible for, and does not endorse, any research project, opportunity, or other type of project listed. Reasonable attempts have been made to ensure projects listed have appropriate approval from a recognised body. Participants are responsible for satisfying themselves that appropriate approval procedures have been met before taking part. Participants are advised to read the participant information sheet that the researcher will provide to you. If you do agree to participate and/or you have any concerns regarding the project, these should be directed to the researcher or other contacts on the participant information sheet.
Illness perceptions refer to a person's understanding, and beliefs regarding their condition and treatment. The research team are looking for people who have had a stroke over six months ago and live in the community to join the study. Suitable participants will be required to come to ACU health clinics for about 30 minutes to complete a short survey and two brief questionnaires to complete the screening process. They will then be provided an activity log in which they will be asked to record their exercise or rehabilitation activities on a daily basis, over a four-week period.
Find out more about the study
Disclaimer
Please note the following disclaimer applies to all research projects listed on this page:
The Stroke Foundation recognises the value of all levels of research and the welfare and experiences of those affected. The Stroke Foundation is not responsible for, and does not endorse, any research project, opportunity, or other type of project listed. Reasonable attempts have been made to ensure projects listed have appropriate approval from a recognised body. Participants are responsible for satisfying themselves that appropriate approval procedures have been met before taking part. Participants are advised to read the participant information sheet that the researcher will provide to you. If you do agree to participate and/or you have any concerns regarding the project, these should be directed to the researcher or other contacts on the participant information sheet.
Can moderate levels of exercise improve brain function in people with stroke?
The purpose of this study is to investigate whether moderate intensity exercise can improve capacity for neuroplasticity in the brain, to support recovery after stroke. Participants will attend our neurorehabilitation clinic for a single session and be randomised to either an exercise or rest condition. Brain measures will be performed before and after exercise (or rest).
MIDAS 2: Modafinil In Debilitating Fatigue After Stroke 2
This study is recruiting community-dwelling stroke survivors who are experiencing persistent and non-resolving fatigue 3 or more months after their stroke, to test whether modafinil significantly improves participant quality of life compared to placebo. Participants will be randomised to either modafinil (200 mg daily) or an identical placebo for 56 days.
Evaluating a promising treatment for post-stroke depression
Around 50% of people who survive stroke experience post-stroke depression. Repetitive transcranial magnetic stimulation (rTMS) is a safe and promising treatment that increases brain activity with electromagnetic pulses and can improve depression. This study aims to optimise rTMS therapy by identifying stroke characteristics that could be enable greater clinical benefit. People who are experiencing depression after stroke are encouraged to contact the research team. After being screened for safety, participants will have an MRI scan followed by 10 rTMS treatment sessions over two weeks.
Can restorative brain-computer interfaces improve hand motor functions after a stroke?
This study is investigating whether neurofeedback training can improve hand movement after stroke. Participation involves attending 20 sessions at the University of Adelaide, during which participants imagine they extend their fingers and receive actual finger extension via a bionic hand involved with their fingers. People who have had a stroke at least 6 months ago, are able to understand auditory commands presented in English, and are independently mobile are invited to take part.
We are recruiting people with stroke who would like to participate in a therapy program that focuses on touch sensation and use of the hand. Potential participants should be adults (over 18 years of age) who have had a stroke and have altered feeling in their hand. Participants in the study will be asked to attend assessment and therapy appointments 14 times over a period of six months.
Disclaimer
Please note the following disclaimer applies to all research projects listed on this page:
The National Stroke Foundation recognises the value of all levels of research and the welfare and experiences of those affected. The National Stroke Foundation is not responsible for, and does not endorse, any research project, opportunity, or other type of project listed. Reasonable attempts have been made to ensure projects listed have appropriate approval from a recognised body. Participants are responsible for satisfying themselves that appropriate approval procedures have been met before taking part. Participants are advised to read the participant information sheet that the researcher will provide to you. If you do agree to participate and/or you have any concerns regarding the project, these should be directed to the researcher or other contacts on the participant information sheet.
Can moderate levels of exercise improve brain function in people with stroke?
The purpose of this study is to investigate whether moderate intensity exercise can improve capacity for neuroplasticity in the brain, to support recovery after stroke. Participants will attend our neurorehabilitation clinic for a single session and be randomised to either an exercise or rest condition. Brain measures will be performed before and after exercise (or rest).
MIDAS 2: Modafinil In Debilitating Fatigue After Stroke 2
This study is recruiting community-dwelling stroke survivors who are experiencing persistent and non-resolving fatigue 3 or more months after their stroke, to test whether modafinil significantly improves participant quality of life compared to placebo. Participants will be randomised to either modafinil (200 mg daily) or an identical placebo for 56 days.
Evaluating a promising treatment for post-stroke depression
Around 50% of people who survive stroke experience post-stroke depression. Repetitive transcranial magnetic stimulation (rTMS) is a safe and promising treatment that increases brain activity with electromagnetic pulses and can improve depression. This study aims to optimise rTMS therapy by identifying stroke characteristics that could be enable greater clinical benefit. People who are experiencing depression after stroke are encouraged to contact the research team. After being screened for safety, participants will have an MRI scan followed by 10 rTMS treatment sessions over two weeks.
Can restorative brain-computer interfaces improve hand motor functions after a stroke?
This study is investigating whether neurofeedback training can improve hand movement after stroke. Participation involves attending 20 sessions at the University of Adelaide, during which participants imagine they extend their fingers and receive actual finger extension via a bionic hand involved with their fingers. People who have had a stroke at least 6 months ago, are able to understand auditory commands presented in English, and are independently mobile are invited to take part.
We are recruiting people with stroke who would like to participate in a therapy program that focuses on touch sensation and use of the hand. Potential participants should be adults (over 18 years of age) who have had a stroke and have altered feeling in their hand. Participants in the study will be asked to attend assessment and therapy appointments 14 times over a period of six months.
Disclaimer
Please note the following disclaimer applies to all research projects listed on this page:
The National Stroke Foundation recognises the value of all levels of research and the welfare and experiences of those affected. The National Stroke Foundation is not responsible for, and does not endorse, any research project, opportunity, or other type of project listed. Reasonable attempts have been made to ensure projects listed have appropriate approval from a recognised body. Participants are responsible for satisfying themselves that appropriate approval procedures have been met before taking part. Participants are advised to read the participant information sheet that the researcher will provide to you. If you do agree to participate and/or you have any concerns regarding the project, these should be directed to the researcher or other contacts on the participant information sheet.
The aim of the study is to investigate the acceptability of a carer-supported home based exercise program for stroke survivors, targeted at increasing physical activity levels. It also aims to collect exercise behaviour information, exercise preferences and enablers and barriers to exercise. Participants will be required to complete an online questionnaire which will take approximately 15 minutes. This can alternatively be completed over the phone if required.
Understanding the continuum of care and outcomes after stroke in Tasmania - a qualitative study
Researchers in Tasmania are doing a study to understand the experiences with health care of people who have had a stroke, and with their life after coming home from hospital. Before starting the study, the research team would like some people who had a stroke or their caregivers that live in Tasmania to provide feedback on our protocol, participant information sheet, interview question guides, and recruitment flyer.
Disclaimer
Please note the following disclaimer applies to all research projects listed on this page:
The National Stroke Foundation recognises the value of all levels of research and the welfare and experiences of those affected. The National Stroke Foundation is not responsible for, and does not endorse, any research project, opportunity, or other type of project listed. Reasonable attempts have been made to ensure projects listed have appropriate approval from a recognised body. Participants are responsible for satisfying themselves that appropriate approval procedures have been met before taking part. Participants are advised to read the participant information sheet that the researcher will provide to you. If you do agree to participate and/or you have any concerns regarding the project, these should be directed to the researcher or other contacts on the participant information sheet.
The aim of the study is to investigate the acceptability of a carer-supported home based exercise program for stroke survivors, targeted at increasing physical activity levels. It also aims to collect exercise behaviour information, exercise preferences and enablers and barriers to exercise. Participants will be required to complete an online questionnaire which will take approximately 15 minutes. This can alternatively be completed over the phone if required.
Understanding the continuum of care and outcomes after stroke in Tasmania - a qualitative study
Researchers in Tasmania are doing a study to understand the experiences with health care of people who have had a stroke, and with their life after coming home from hospital. Before starting the study, the research team would like some people who had a stroke or their caregivers that live in Tasmania to provide feedback on our protocol, participant information sheet, interview question guides, and recruitment flyer.
Disclaimer
Please note the following disclaimer applies to all research projects listed on this page:
The National Stroke Foundation recognises the value of all levels of research and the welfare and experiences of those affected. The National Stroke Foundation is not responsible for, and does not endorse, any research project, opportunity, or other type of project listed. Reasonable attempts have been made to ensure projects listed have appropriate approval from a recognised body. Participants are responsible for satisfying themselves that appropriate approval procedures have been met before taking part. Participants are advised to read the participant information sheet that the researcher will provide to you. If you do agree to participate and/or you have any concerns regarding the project, these should be directed to the researcher or other contacts on the participant information sheet.
Co-design of a personalised physical activity intervention for stroke survivors
The aim of this study is to design a pathway to personalised, engaging and targeted physical activity programs for stroke survivors. Researchers working together with stroke survivors, carers and clinicians will “co-design” a new physical activity intervention, using an integrated knowledge translation approach, that will be tested in a future trial. Participants will be asked to join 1 or 2 workshops, either in person, or from home via phone or video.
MIDAS 2: Modafinil In Debilitating Fatigue After Stroke 2
This study is recruiting community-dwelling stroke survivors who are experiencing persistent and non-resolving fatigue 3 or more months after their stroke, to test whether modafinil significantly improves participant quality of life compared to placebo. Participants will be randomised to either modafinil (200 mg daily) or an identical placebo for 56 days.
Perispinal Etanercept to improve Stroke Outcomes (PESTO) clinical trial
Funded by the Federal Government through the Medical Research Future Fund, Australia’s first multi-centred international clinical trial of perispinal etanercept in chronic stroke is actively recruiting participants. This trial seeks to determine if perispinal etanercept improves quality of life in working age survivors of stroke with a moderate to severe disability, and if repeated treatments lead to more improvement compared to one treatment. Australian sites are located in Melbourne, Victoria. We understand that interstate travel is particularly challenging at the moment, and we take the time to ensure that anyone who is interested and eligible makes an informed decision about participating.
ADaPT: Aphasia, Depression, and Psychological Treatment
This study aims to investigate the feasibility and effectiveness of a modified psychological therapy for reducing depressive symptoms in individuals with aphasia secondary to stroke. The research team are seeking interest from adults living in Melbourne who have acquired aphasia following stroke and have experienced low mood. Research participants will take part in a 10-week intervention programme delivered by a qualified clinical neuropsychologist, at no financial cost.
We are recruiting people with stroke who would like to participate in a therapy program that focuses on touch sensation and use of the hand. Potential participants should be adults (over 18 years of age) who have had a stroke and have altered feeling in their hand. Participants in the study will be asked to attend assessment and therapy appointments 14 times over a period of six months.
Hemispatial neglect, EEG correlates and the effect of blue wavelength light on spatial inattention
Those who survive a stroke often have difficulties paying attention to the world around them. While some people might get distracted a little more easily, others might seem to ignore the left-hand side of the world, for example only eat the food on the right-hand side of their plate. This is known as spatial neglect. To help us understand why this affects some people, we are looking for people who have experienced a stroke to complete a phone interview, and attend 1-2 sessions at Monash University in Clayton for an EEG - a bit like a swimming cap that measures your brain activity.
Improving arm function after stroke using task-specific training
Many people who experience a stroke have difficulty moving their arm and hand, and research has shown that people can still have non-functional arms at 6 months after stroke. Our researchers are conducting a multi-centre, randomised controlled trial to test whether a programme of specific training exercises is more effective than usual care. We are seeking people with stroke who have difficulty using their arm and/or hand to take part in this study. The study will involve assessments of arm and hand function before and after a 6 week period, with a follow-up assessment after 6 months.
Have you had a stroke or acquired brain injury (ABI) that has affected how you think and feel? Are you interested in learning ways to deal with these changes so you can do more of the things you value in life? Difficulties with memory and other thinking skills, along with changes in mood, can affect the capacity to do things that are meaningful and valued, such as work, leisure and social activities. VaLiANT is an 8-week group program located at La Trobe University in Bundoora (VIC), or run via telehealth (Zoom videoconferencing) during periods of Covid-related restrictions. Adults (aged 18 years or over) who have had a stroke at least 3 months ago can participate. The program is designed to increase your participation in activities that you value while helping you learn strategies for dealing with changes in thinking and mood. You are invited to participate in our research investigating the impact of participating in the group on the lives of people with ABI.
Disclaimer
Please note the following disclaimer applies to all research projects listed on this page:
The National Stroke Foundation recognises the value of all levels of research and the welfare and experiences of those affected. The National Stroke Foundation is not responsible for, and does not endorse, any research project, opportunity, or other type of project listed. Reasonable attempts have been made to ensure projects listed have appropriate approval from a recognised body. Participants are responsible for satisfying themselves that appropriate approval procedures have been met before taking part. Participants are advised to read the participant information sheet that the researcher will provide to you. If you do agree to participate and/or you have any concerns regarding the project, these should be directed to the researcher or other contacts on the participant information sheet.
Co-design of a personalised physical activity intervention for stroke survivors
The aim of this study is to design a pathway to personalised, engaging and targeted physical activity programs for stroke survivors. Researchers working together with stroke survivors, carers and clinicians will “co-design” a new physical activity intervention, using an integrated knowledge translation approach, that will be tested in a future trial. Participants will be asked to join 1 or 2 workshops, either in person, or from home via phone or video.
MIDAS 2: Modafinil In Debilitating Fatigue After Stroke 2
This study is recruiting community-dwelling stroke survivors who are experiencing persistent and non-resolving fatigue 3 or more months after their stroke, to test whether modafinil significantly improves participant quality of life compared to placebo. Participants will be randomised to either modafinil (200 mg daily) or an identical placebo for 56 days.
Perispinal Etanercept to improve Stroke Outcomes (PESTO) clinical trial
Funded by the Federal Government through the Medical Research Future Fund, Australia’s first multi-centred international clinical trial of perispinal etanercept in chronic stroke is actively recruiting participants. This trial seeks to determine if perispinal etanercept improves quality of life in working age survivors of stroke with a moderate to severe disability, and if repeated treatments lead to more improvement compared to one treatment. Australian sites are located in Melbourne, Victoria. We understand that interstate travel is particularly challenging at the moment, and we take the time to ensure that anyone who is interested and eligible makes an informed decision about participating.
ADaPT: Aphasia, Depression, and Psychological Treatment
This study aims to investigate the feasibility and effectiveness of a modified psychological therapy for reducing depressive symptoms in individuals with aphasia secondary to stroke. The research team are seeking interest from adults living in Melbourne who have acquired aphasia following stroke and have experienced low mood. Research participants will take part in a 10-week intervention programme delivered by a qualified clinical neuropsychologist, at no financial cost.
We are recruiting people with stroke who would like to participate in a therapy program that focuses on touch sensation and use of the hand. Potential participants should be adults (over 18 years of age) who have had a stroke and have altered feeling in their hand. Participants in the study will be asked to attend assessment and therapy appointments 14 times over a period of six months.
Hemispatial neglect, EEG correlates and the effect of blue wavelength light on spatial inattention
Those who survive a stroke often have difficulties paying attention to the world around them. While some people might get distracted a little more easily, others might seem to ignore the left-hand side of the world, for example only eat the food on the right-hand side of their plate. This is known as spatial neglect. To help us understand why this affects some people, we are looking for people who have experienced a stroke to complete a phone interview, and attend 1-2 sessions at Monash University in Clayton for an EEG - a bit like a swimming cap that measures your brain activity.
Improving arm function after stroke using task-specific training
Many people who experience a stroke have difficulty moving their arm and hand, and research has shown that people can still have non-functional arms at 6 months after stroke. Our researchers are conducting a multi-centre, randomised controlled trial to test whether a programme of specific training exercises is more effective than usual care. We are seeking people with stroke who have difficulty using their arm and/or hand to take part in this study. The study will involve assessments of arm and hand function before and after a 6 week period, with a follow-up assessment after 6 months.
Have you had a stroke or acquired brain injury (ABI) that has affected how you think and feel? Are you interested in learning ways to deal with these changes so you can do more of the things you value in life? Difficulties with memory and other thinking skills, along with changes in mood, can affect the capacity to do things that are meaningful and valued, such as work, leisure and social activities. VaLiANT is an 8-week group program located at La Trobe University in Bundoora (VIC), or run via telehealth (Zoom videoconferencing) during periods of Covid-related restrictions. Adults (aged 18 years or over) who have had a stroke at least 3 months ago can participate. The program is designed to increase your participation in activities that you value while helping you learn strategies for dealing with changes in thinking and mood. You are invited to participate in our research investigating the impact of participating in the group on the lives of people with ABI.
Disclaimer
Please note the following disclaimer applies to all research projects listed on this page:
The National Stroke Foundation recognises the value of all levels of research and the welfare and experiences of those affected. The National Stroke Foundation is not responsible for, and does not endorse, any research project, opportunity, or other type of project listed. Reasonable attempts have been made to ensure projects listed have appropriate approval from a recognised body. Participants are responsible for satisfying themselves that appropriate approval procedures have been met before taking part. Participants are advised to read the participant information sheet that the researcher will provide to you. If you do agree to participate and/or you have any concerns regarding the project, these should be directed to the researcher or other contacts on the participant information sheet.
Constraint-induced movement therapy is strongly recommended by Stroke Foundation for stroke survivors to receive as part of their arm rehabilitation after stroke. This study aims to understand the experiences of stroke survivors and carers who have received or supported this therapy through one-on-one interviews. The researchers are seeking a stroke survivor and a carer of a stroke survivor to partner in our study to review the research themes and help share the study findings.
MIDAS 2: Modafinil In Debilitating Fatigue After Stroke 2
This study is recruiting community-dwelling stroke survivors who are experiencing persistent and non-resolving fatigue 3 or more months after their stroke, to test whether modafinil significantly improves participant quality of life compared to placebo. Participants will be randomised to either modafinil (200 mg daily) or an identical placebo for 56 days.
The relationship between thinking skills and daily functioning in adults with brain injuries
The University of Western Australia is researching how thinking skills following a brain injury like stroke affect how well people can do things such as work or hobbies. Participants will need to attend the University of Western Australia in Perth to have an assessment and complete questionnaires and tests, and attend a follow-up in three months’ time. Case managers or partners will also be invited to participate. A report about how participants went can be provided on request.
Disclaimer
Please note the following disclaimer applies to all research projects listed on this page:
The National Stroke Foundation recognises the value of all levels of research and the welfare and experiences of those affected. The National Stroke Foundation is not responsible for, and does not endorse, any research project, opportunity, or other type of project listed. Reasonable attempts have been made to ensure projects listed have appropriate approval from a recognised body. Participants are responsible for satisfying themselves that appropriate approval procedures have been met before taking part. Participants are advised to read the participant information sheet that the researcher will provide to you. If you do agree to participate and/or you have any concerns regarding the project, these should be directed to the researcher or other contacts on the participant information sheet.
Constraint-induced movement therapy is strongly recommended by Stroke Foundation for stroke survivors to receive as part of their arm rehabilitation after stroke. This study aims to understand the experiences of stroke survivors and carers who have received or supported this therapy through one-on-one interviews. The researchers are seeking a stroke survivor and a carer of a stroke survivor to partner in our study to review the research themes and help share the study findings.
MIDAS 2: Modafinil In Debilitating Fatigue After Stroke 2
This study is recruiting community-dwelling stroke survivors who are experiencing persistent and non-resolving fatigue 3 or more months after their stroke, to test whether modafinil significantly improves participant quality of life compared to placebo. Participants will be randomised to either modafinil (200 mg daily) or an identical placebo for 56 days.
The relationship between thinking skills and daily functioning in adults with brain injuries
The University of Western Australia is researching how thinking skills following a brain injury like stroke affect how well people can do things such as work or hobbies. Participants will need to attend the University of Western Australia in Perth to have an assessment and complete questionnaires and tests, and attend a follow-up in three months’ time. Case managers or partners will also be invited to participate. A report about how participants went can be provided on request.
Disclaimer
Please note the following disclaimer applies to all research projects listed on this page:
The National Stroke Foundation recognises the value of all levels of research and the welfare and experiences of those affected. The National Stroke Foundation is not responsible for, and does not endorse, any research project, opportunity, or other type of project listed. Reasonable attempts have been made to ensure projects listed have appropriate approval from a recognised body. Participants are responsible for satisfying themselves that appropriate approval procedures have been met before taking part. Participants are advised to read the participant information sheet that the researcher will provide to you. If you do agree to participate and/or you have any concerns regarding the project, these should be directed to the researcher or other contacts on the participant information sheet.
