Get involved in research
Survivors of stroke, families, carers and the community are central to stroke research.You can:
- help direct research as part of the project team
- share your views and experience
- test new treatments to find out what works.
Getting involved in research may sometimes also allow you to access emerging therapy you wouldn’t otherwise be able to get. Involvement may also be part of your stroke recovery plan.
Stroke Foundation has an e-learning module to help you work well with stroke researchers.
Browse the list below to find projects relevant to you, in your area or online.
Review of the NHMRC Statement on consumer and community involvement in health and medical research
The National Health and Medical Research Council (NHMRC) and Consumers Health Forum are undertaking a national stakeholder engagement process to review the 2016 Statement on Consumer and Community Involvement in Health and Medical Research. It aims to support consumer and community involvement across all types and levels of health and medical research. You're invited to share your views on the Statement by attending an in-person or online workshops during April 2024, or completing an online survey. The survey is open until Friday 31 May 2024.
This study is inspired by the trend of designer scrubs (using attractive print patterns) in hospital and other settings. It aims to see if health worker scrubs printed with communication symbols might improve communication between patients with disabilities and health workers. The team includes communication experts and health researchers from Adelaide University, UniSA, Flinders University and the International Society for Augmentative and Alternative Communication (ISAAC Australia). Adults and school-aged people with communication disability, family members and carers, health professionals, and augmentative and alternative communication experts are invited to take a short online survey.
Lived-experience advisor: cell therapy for acute stroke
Researchers from La Trobe University are looking at a novel treatment of intravenous human amniotic epithelial cells to see whether this reduces disability after an acute ischemic stroke. They are seeking advice from members of the community with a lived experience of having a stroke, or caring for someone and/or being the medical decision maker for someone who has had a stroke. The advisor will work directly with senior members of the research team to provide advice about the study design during its planning and pre-ethics submission stages.
Researchers from the University of Technology Sydney are seeking three (3) lived-experience partners for a study exploring the health, health care use and health behaviours of adults living post-stroke over a long period of time. The study will provide an opportunity (in partnership with those with lived experience) to help inform effective support and care and ensure the health and well-being of those living following a stroke. People with lived experience of stroke as a survivor, carer or family member are invited to attend 2–3 meetings per year and provide input, reflection and advice on study design, progress, procedure and decision-making. Meetings will be held on-site at the campus of University of Technology Sydney, Ultimo, NSW, where possible. Members may also join meetings online.
How do people’s thoughts and feelings impact their psychological wellbeing post-stroke?
This survey study, led by researchers at the University of Derby, UK, aims to improve understanding of psychological factors and their impacts on health and wellbeing for survivors of stroke. Participation involves providing some basic demographic and stroke-related information, and completing some short online questionnaires about the impact of your stroke. This should take no longer than approximately 15 minutes.
CPR and first aid for people who use a wheelchair
Do you use a wheelchair? Or do you care for a person or people who use a wheelchair? This study is looking at ways to provide CPR or first aid or choking care to wheelchair users. It is being conducted by Elisha Deegan, PhD candidate, School of Nursing and Midwifery at Western Sydney University. The study involves a 30–60 minute interview with the researcher by zoom, or phone, or face to face if located in Northern Tasmania.
Measuring arm and hand recovery: what matters most?
Researchers from Monash University are seeking opinions on the ways for measuring arm and hand recovery after stroke. They invite adults who have had a stroke, or family members or caregivers of someone who has had a stroke, to complete a 10-minute survey.
Aphasia and using the Internet
A team at the Queensland Aphasia Research Centre are co-designing software to help people with aphasia to use the Internet. Family members or carers of people with post-stroke aphasia can take part in this phase of the project. This involves a 3-hour focus group (online or in-person at The University of Queensland, Herston) to share your experiences of supporting a loved one with aphasia to use the Internet.
Post-stroke lateropulsion: clinician perspectives
Researchers from The University of Notre Dame Australia are looking for stroke rehabilitation clinicians and educators in Australia and Aotearoa New Zealand to share their experiences and perspectives on management of post-stroke lateropulsion (pusher syndrome/pusher behaviour). The online survey takes 5–10 minutes to complete.
Environmental enrichment for young stroke survivors
Cognitive problems are common in young stroke survivors and negatively impact quality of life. Researchers from Edith Cowan University are evaluating the benefits of a 12-week lifestyle program for young stroke survivors (age 18-65). The program includes physical activity, cognitive training and guidance on healthy eating and sleep. The program can be delivered remotely for people around Australia, including regional and remote areas.
Outcome prediction in intracerebral haemorrhage study (OPTICS)
The George Institute is currently running a focus group on the potential involvement of machine learning in the decision-making process involved in the prognosis and treatment of intracerebral haemorrhage (ICH) stroke. The focus group will be either in-person or online, and will run for 90 minutes.
Unmet needs of support people of survivors of stroke
Researchers at Monash University invite people who provide informal care to survivors of stroke to participate in a national survey to understand if their needs in this role are being met. This will provide important information for improved community services and additional support strategies for survivors of stroke and their primary support persons. The survey will take approximately 15–20 minutes to complete. The survey can be completed online, by post or over the phone with a member of the research team.
The Real Price of Health: experiences of out-of-pocket costs in Australia
Researchers from the College of Health and Medicine at the Australian National University are examining how people with chronic illnesses experience paying for certain health services or medicines, and the choices they make. The outcomes of this research will be used to inform Australian health policy and improve the equity of healthcare financing in Australia. If you live with a chronic illness, or are a carer or family member of someone living with a chronic illness, you are invited to participate an interview conducted either face-to-face or online.
Researchers from La Trobe University are looking for people with aphasia to trial an online aphasia therapy called M-MAT Tele.
M-MAT Tele is a group therapy that aims to improve talking for people with aphasia.
A speech pathologist provides therapy to a group of three (3) people with aphasia.
You can take part if you have aphasia and can start therapy 3–6 months after your stroke.
You would receive thirty (30) hours of online therapy.
Therapy would be two hours per day, three days each week over five weeks.
Co-designing a multicultural digital stroke education program
University of Wollongong is conducting a research project called "Diverse Hearts – Co-designing a culturally tailored, evidence-based, digital education program to reduce stroke risk factors and promote mental well-being for people from culturally and linguistically diverse (CALD) communities." They are seeking people from Arabic, Dari, Chinese and Vietnamese-speaking communities who have high blood pressure, cholesterol, diabetes, or are a stroke survivor. They are also looking to speak to health professionals and people from non-government organisations who work with people from multicultural communities. Participation will involve interviews or focus group discussions, followed by reviews of the digital education modules.
Researchers from the University of Newcastle are conducting the FoCCuS4HEART project, which seeks to work with informal female carers of stroke survivors to develop strategies and tools to support carers to self-manage their emotional and physical health. If you’re a woman who provides care or has provided care to someone who has had a stroke, you can help by sharing your experiences in their survey.
Fatigue-o-meter: A tool for post-stroke fatigue
If you have fatigue after stroke, or you support someone living with post-stroke fatigue, you might be interested in this study from the University of Newcastle. The research team have now co-designed an educational tool with survivors of stroke, their support crew and with health professionals. They will be testing the tool as a treatment, guided by a health professional in 2024.
Emotional Health After Brain Injury
Have you experienced a brain injury? If so, you’re invited to participate in a study being run by researchers at the School of Psychological Science at the University of Western Australia. This study involves completing a series of questionnaires, which may take approximately 30-45 minutes to complete.
Understanding the impact of Stroke on family - Surviving and Thriving AfteR Stroke (STARS)
The STARS team at the University of Technology Sydney want to understand the impact of stroke on families. We also want to identify current practices stroke clinicians use to support families where a parent has a stroke, gaps, barriers and facilitators to providing optimal care. We want to interview all family members where a parent has had a stroke, including parents, co-parents and children (3–18 years old). Families can live anywhere in Australia. We can interview families online and where possible, in person. Stroke clinicians can also join focus groups or interviews to share their experiences of providing services to families where a parent has had a stroke.
Dysphagia telerehabilitation program for stroke survivors living in the community
This research study from the University of Sydney is about swallowing therapy via telehealth. Taking part in this study is voluntary. The research team are inviting people who had a stroke more than 6 months ago and have swallowing difficulties to participate.
UPLIFT trial: Integrated UPper limb and Language Impairment and Functional Training after stroke
Do you have difficulty using your arm and communicating after your stroke? The UPLIFT trial is recruiting people who are 3 to 24 months post-stroke and living in the community to test a new intensive rehabilitation program that trains arm movement and communication together. Depending on the amount of function you have, the program will be provided at home via telerehabilitation, or in person at a health clinic.
Review of the NHMRC Statement on consumer and community involvement in health and medical research
The National Health and Medical Research Council (NHMRC) and Consumers Health Forum are undertaking a national stakeholder engagement process to review the 2016 Statement on Consumer and Community Involvement in Health and Medical Research. It aims to support consumer and community involvement across all types and levels of health and medical research. You're invited to share your views on the Statement by attending an in-person or online workshops during April 2024, or completing an online survey. The survey is open until Friday 31 May 2024.
This study is inspired by the trend of designer scrubs (using attractive print patterns) in hospital and other settings. It aims to see if health worker scrubs printed with communication symbols might improve communication between patients with disabilities and health workers. The team includes communication experts and health researchers from Adelaide University, UniSA, Flinders University and the International Society for Augmentative and Alternative Communication (ISAAC Australia). Adults and school-aged people with communication disability, family members and carers, health professionals, and augmentative and alternative communication experts are invited to take a short online survey.
Lived-experience advisor: cell therapy for acute stroke
Researchers from La Trobe University are looking at a novel treatment of intravenous human amniotic epithelial cells to see whether this reduces disability after an acute ischemic stroke. They are seeking advice from members of the community with a lived experience of having a stroke, or caring for someone and/or being the medical decision maker for someone who has had a stroke. The advisor will work directly with senior members of the research team to provide advice about the study design during its planning and pre-ethics submission stages.
Researchers from the University of Technology Sydney are seeking three (3) lived-experience partners for a study exploring the health, health care use and health behaviours of adults living post-stroke over a long period of time. The study will provide an opportunity (in partnership with those with lived experience) to help inform effective support and care and ensure the health and well-being of those living following a stroke. People with lived experience of stroke as a survivor, carer or family member are invited to attend 2–3 meetings per year and provide input, reflection and advice on study design, progress, procedure and decision-making. Meetings will be held on-site at the campus of University of Technology Sydney, Ultimo, NSW, where possible. Members may also join meetings online.
How do people’s thoughts and feelings impact their psychological wellbeing post-stroke?
This survey study, led by researchers at the University of Derby, UK, aims to improve understanding of psychological factors and their impacts on health and wellbeing for survivors of stroke. Participation involves providing some basic demographic and stroke-related information, and completing some short online questionnaires about the impact of your stroke. This should take no longer than approximately 15 minutes.
CPR and first aid for people who use a wheelchair
Do you use a wheelchair? Or do you care for a person or people who use a wheelchair? This study is looking at ways to provide CPR or first aid or choking care to wheelchair users. It is being conducted by Elisha Deegan, PhD candidate, School of Nursing and Midwifery at Western Sydney University. The study involves a 30–60 minute interview with the researcher by zoom, or phone, or face to face if located in Northern Tasmania.
Measuring arm and hand recovery: what matters most?
Researchers from Monash University are seeking opinions on the ways for measuring arm and hand recovery after stroke. They invite adults who have had a stroke, or family members or caregivers of someone who has had a stroke, to complete a 10-minute survey.
Aphasia and using the Internet
A team at the Queensland Aphasia Research Centre are co-designing software to help people with aphasia to use the Internet. Family members or carers of people with post-stroke aphasia can take part in this phase of the project. This involves a 3-hour focus group (online or in-person at The University of Queensland, Herston) to share your experiences of supporting a loved one with aphasia to use the Internet.
Post-stroke lateropulsion: clinician perspectives
Researchers from The University of Notre Dame Australia are looking for stroke rehabilitation clinicians and educators in Australia and Aotearoa New Zealand to share their experiences and perspectives on management of post-stroke lateropulsion (pusher syndrome/pusher behaviour). The online survey takes 5–10 minutes to complete.
Environmental enrichment for young stroke survivors
Cognitive problems are common in young stroke survivors and negatively impact quality of life. Researchers from Edith Cowan University are evaluating the benefits of a 12-week lifestyle program for young stroke survivors (age 18-65). The program includes physical activity, cognitive training and guidance on healthy eating and sleep. The program can be delivered remotely for people around Australia, including regional and remote areas.
Outcome prediction in intracerebral haemorrhage study (OPTICS)
The George Institute is currently running a focus group on the potential involvement of machine learning in the decision-making process involved in the prognosis and treatment of intracerebral haemorrhage (ICH) stroke. The focus group will be either in-person or online, and will run for 90 minutes.
Unmet needs of support people of survivors of stroke
Researchers at Monash University invite people who provide informal care to survivors of stroke to participate in a national survey to understand if their needs in this role are being met. This will provide important information for improved community services and additional support strategies for survivors of stroke and their primary support persons. The survey will take approximately 15–20 minutes to complete. The survey can be completed online, by post or over the phone with a member of the research team.
The Real Price of Health: experiences of out-of-pocket costs in Australia
Researchers from the College of Health and Medicine at the Australian National University are examining how people with chronic illnesses experience paying for certain health services or medicines, and the choices they make. The outcomes of this research will be used to inform Australian health policy and improve the equity of healthcare financing in Australia. If you live with a chronic illness, or are a carer or family member of someone living with a chronic illness, you are invited to participate an interview conducted either face-to-face or online.
Researchers from La Trobe University are looking for people with aphasia to trial an online aphasia therapy called M-MAT Tele.
M-MAT Tele is a group therapy that aims to improve talking for people with aphasia.
A speech pathologist provides therapy to a group of three (3) people with aphasia.
You can take part if you have aphasia and can start therapy 3–6 months after your stroke.
You would receive thirty (30) hours of online therapy.
Therapy would be two hours per day, three days each week over five weeks.
Co-designing a multicultural digital stroke education program
University of Wollongong is conducting a research project called "Diverse Hearts – Co-designing a culturally tailored, evidence-based, digital education program to reduce stroke risk factors and promote mental well-being for people from culturally and linguistically diverse (CALD) communities." They are seeking people from Arabic, Dari, Chinese and Vietnamese-speaking communities who have high blood pressure, cholesterol, diabetes, or are a stroke survivor. They are also looking to speak to health professionals and people from non-government organisations who work with people from multicultural communities. Participation will involve interviews or focus group discussions, followed by reviews of the digital education modules.
Researchers from the University of Newcastle are conducting the FoCCuS4HEART project, which seeks to work with informal female carers of stroke survivors to develop strategies and tools to support carers to self-manage their emotional and physical health. If you’re a woman who provides care or has provided care to someone who has had a stroke, you can help by sharing your experiences in their survey.
Fatigue-o-meter: A tool for post-stroke fatigue
If you have fatigue after stroke, or you support someone living with post-stroke fatigue, you might be interested in this study from the University of Newcastle. The research team have now co-designed an educational tool with survivors of stroke, their support crew and with health professionals. They will be testing the tool as a treatment, guided by a health professional in 2024.
Emotional Health After Brain Injury
Have you experienced a brain injury? If so, you’re invited to participate in a study being run by researchers at the School of Psychological Science at the University of Western Australia. This study involves completing a series of questionnaires, which may take approximately 30-45 minutes to complete.
Understanding the impact of Stroke on family - Surviving and Thriving AfteR Stroke (STARS)
The STARS team at the University of Technology Sydney want to understand the impact of stroke on families. We also want to identify current practices stroke clinicians use to support families where a parent has a stroke, gaps, barriers and facilitators to providing optimal care. We want to interview all family members where a parent has had a stroke, including parents, co-parents and children (3–18 years old). Families can live anywhere in Australia. We can interview families online and where possible, in person. Stroke clinicians can also join focus groups or interviews to share their experiences of providing services to families where a parent has had a stroke.
Dysphagia telerehabilitation program for stroke survivors living in the community
This research study from the University of Sydney is about swallowing therapy via telehealth. Taking part in this study is voluntary. The research team are inviting people who had a stroke more than 6 months ago and have swallowing difficulties to participate.
UPLIFT trial: Integrated UPper limb and Language Impairment and Functional Training after stroke
Do you have difficulty using your arm and communicating after your stroke? The UPLIFT trial is recruiting people who are 3 to 24 months post-stroke and living in the community to test a new intensive rehabilitation program that trains arm movement and communication together. Depending on the amount of function you have, the program will be provided at home via telerehabilitation, or in person at a health clinic.
There are currently no research projects listed for the Australian Capital Territory. Please check the National tab for projects recruiting Australia-wide.
There are currently no research projects listed for the Australian Capital Territory. Please check the National tab for projects recruiting Australia-wide.
The Allen Study: exploring stroke survivors' lived experiences
The Allen Study from the University of Technology Sydney explores the health, health care use and health behaviours of adults living post-stroke over a long period of time. The study will provide an opportunity (in partnership with those with lived experience) to help inform effective support and care and ensure the health and well-being of those living following a stroke. People who have had a stroke in the past are invited to complete a 30-minute, online baseline survey annually from 2024 until 2031 (or for the duration of the participant's involvement in the study).
Researchers from the University of Technology Sydney are seeking three (3) lived-experience partners for a study exploring the health, health care use and health behaviours of adults living post-stroke over a long period of time. The study will provide an opportunity (in partnership with those with lived experience) to help inform effective support and care and ensure the health and well-being of those living following a stroke. People with lived experience of stroke as a survivor, carer or family member are invited to attend 2–3 meetings per year and provide input, reflection and advice on study design, progress, procedure and decision-making. Meetings will be held on-site at the campus of University of Technology Sydney, Ultimo, NSW, where possible. Members may also join meetings online.
Staying connected: using new technologies to personalise stroke recovery
This research project is being led by Professor Leeanne Carey from La Trobe University. It is testing tailored rehabilitation programs, guided by artificial intelligence (AI) and delivered in people's homes, to see whether they improve how well survivors of stroke recover the ability to do everyday activities at home. People who have had a stroke 3–18 months ago and have goals that involve using arms or hands are invited to take part. The study involves a 12-month period, with a clinical assessment at a research centre in Adelaide, Melbourne or Newcastle, and two 6-week therapy blocks delivered remotely.
Outcome prediction in intracerebral haemorrhage study (OPTICS)
The George Institute is currently running a focus group on the potential involvement of machine learning in the decision-making process involved in the prognosis and treatment of intracerebral haemorrhage (ICH) stroke. The focus group will be either in-person or online, and will run for 90 minutes.
Boosting arm recovery after stroke
This study from St Vincent's Health Network Sydney is investigating the delivery of constraint induced movement therapy (CIMT) via telehealth. CIMT is a proven effective therapy for arm recovery after stroke. Participation in this study involves completing an intensive 3-week rehabilitation program with your affected arm for at least 2 hours per day, and wearing a mitt on your non-affected arm at least 6 hours per day, to encourage use of your affected arm in daily life.
The ESTEEM program from the Hunter Medical Research Institute (HMRI), the University of Newcastle and Hunter New England Local Health District enables stroke survivors to exercise, socialise, and participate in art-based thinking activities delivered by community-based care providers. Stroke survivors aged 18 and above, living in the community, who can communicate and independently move (or with the assistance of one person) are invited to participate. Participation will involve attending a program twice a week for a total of 10 weeks, with 30 minutes of exercise, followed by 20 minutes of socialising, and 90 minutes of creative thinking activities, each delivered by a qualified professional.
We are recruiting people with stroke who would like to participate in a therapy program that focuses on touch sensation and use of the hand. Potential participants should be adults (over 18 years of age) who have had a stroke and have altered feeling in their hand. Participants in the study will be asked to attend assessment and therapy appointments 14 times over a period of six months.
The Allen Study: exploring stroke survivors' lived experiences
The Allen Study from the University of Technology Sydney explores the health, health care use and health behaviours of adults living post-stroke over a long period of time. The study will provide an opportunity (in partnership with those with lived experience) to help inform effective support and care and ensure the health and well-being of those living following a stroke. People who have had a stroke in the past are invited to complete a 30-minute, online baseline survey annually from 2024 until 2031 (or for the duration of the participant's involvement in the study).
Researchers from the University of Technology Sydney are seeking three (3) lived-experience partners for a study exploring the health, health care use and health behaviours of adults living post-stroke over a long period of time. The study will provide an opportunity (in partnership with those with lived experience) to help inform effective support and care and ensure the health and well-being of those living following a stroke. People with lived experience of stroke as a survivor, carer or family member are invited to attend 2–3 meetings per year and provide input, reflection and advice on study design, progress, procedure and decision-making. Meetings will be held on-site at the campus of University of Technology Sydney, Ultimo, NSW, where possible. Members may also join meetings online.
Staying connected: using new technologies to personalise stroke recovery
This research project is being led by Professor Leeanne Carey from La Trobe University. It is testing tailored rehabilitation programs, guided by artificial intelligence (AI) and delivered in people's homes, to see whether they improve how well survivors of stroke recover the ability to do everyday activities at home. People who have had a stroke 3–18 months ago and have goals that involve using arms or hands are invited to take part. The study involves a 12-month period, with a clinical assessment at a research centre in Adelaide, Melbourne or Newcastle, and two 6-week therapy blocks delivered remotely.
Outcome prediction in intracerebral haemorrhage study (OPTICS)
The George Institute is currently running a focus group on the potential involvement of machine learning in the decision-making process involved in the prognosis and treatment of intracerebral haemorrhage (ICH) stroke. The focus group will be either in-person or online, and will run for 90 minutes.
Boosting arm recovery after stroke
This study from St Vincent's Health Network Sydney is investigating the delivery of constraint induced movement therapy (CIMT) via telehealth. CIMT is a proven effective therapy for arm recovery after stroke. Participation in this study involves completing an intensive 3-week rehabilitation program with your affected arm for at least 2 hours per day, and wearing a mitt on your non-affected arm at least 6 hours per day, to encourage use of your affected arm in daily life.
The ESTEEM program from the Hunter Medical Research Institute (HMRI), the University of Newcastle and Hunter New England Local Health District enables stroke survivors to exercise, socialise, and participate in art-based thinking activities delivered by community-based care providers. Stroke survivors aged 18 and above, living in the community, who can communicate and independently move (or with the assistance of one person) are invited to participate. Participation will involve attending a program twice a week for a total of 10 weeks, with 30 minutes of exercise, followed by 20 minutes of socialising, and 90 minutes of creative thinking activities, each delivered by a qualified professional.
We are recruiting people with stroke who would like to participate in a therapy program that focuses on touch sensation and use of the hand. Potential participants should be adults (over 18 years of age) who have had a stroke and have altered feeling in their hand. Participants in the study will be asked to attend assessment and therapy appointments 14 times over a period of six months.
There are currently no research projects listed for the Northern Territory. Please check the National tab for projects recruiting Australia-wide.
There are currently no research projects listed for the Northern Territory. Please check the National tab for projects recruiting Australia-wide.
Aphasia and using the Internet
A team at the Queensland Aphasia Research Centre are co-designing software to help people with aphasia to use the Internet. Family members or carers of people with post-stroke aphasia can take part in this phase of the project. This involves a 3-hour focus group (online or in-person at The University of Queensland, Herston) to share your experiences of supporting a loved one with aphasia to use the Internet.
UPLIFT trial: Integrated UPper limb and Language Impairment and Functional Training after stroke
Do you have difficulty using your arm and communicating after your stroke? The UPLIFT trial is recruiting people who are 3 to 24 months post-stroke and living in the community to test a new intensive rehabilitation program that trains arm movement and communication together. Depending on the amount of function you have, the program will be provided at home via telerehabilitation, or in person at a health clinic.
Aphasia and using the Internet
A team at the Queensland Aphasia Research Centre are co-designing software to help people with aphasia to use the Internet. Family members or carers of people with post-stroke aphasia can take part in this phase of the project. This involves a 3-hour focus group (online or in-person at The University of Queensland, Herston) to share your experiences of supporting a loved one with aphasia to use the Internet.
UPLIFT trial: Integrated UPper limb and Language Impairment and Functional Training after stroke
Do you have difficulty using your arm and communicating after your stroke? The UPLIFT trial is recruiting people who are 3 to 24 months post-stroke and living in the community to test a new intensive rehabilitation program that trains arm movement and communication together. Depending on the amount of function you have, the program will be provided at home via telerehabilitation, or in person at a health clinic.
Goal setting to support stroke and brain injury rehabilitation and recovery
Researchers from Flinders University are seeking feedback about a goal-setting app, called RehabChat, which has been designed to support people with stroke or brain injury to set rehabilitation goals and achieve these. RehabChat was co-designed with clinicians and people with brain injury. Adults living with stroke or brain injury, their carers, family members, rehabilitation health professionals, and health students who have completed a clinical placement in rehabilitation are invited to take part in a feedback session in Adelaide.
Staying connected: using new technologies to personalise stroke recovery
This research project is being led by Professor Leeanne Carey from La Trobe University. It is testing tailored rehabilitation programs, guided by artificial intelligence (AI) and delivered in people's homes, to see whether they improve how well survivors of stroke recover the ability to do everyday activities at home. People who have had a stroke 3–18 months ago and have goals that involve using arms or hands are invited to take part. The study involves a 12-month period, with a clinical assessment at a research centre in Adelaide, Melbourne or Newcastle, and two 6-week therapy blocks delivered remotely.
This research project is testing a new treatment for improving recovery of balance and mobility. The study is led by Ashraf Gerges, Physiotherapist and PhD Candidate, from the University of South Australia. This study aims to assess whether combining non-invasive vagus nerve stimulation with physical rehabilitation can enhance the recovery of balance and mobility after stroke. It will also explore whether people find this treatment method acceptable, easy to use, and safe.
Can restorative brain-computer interfaces improve hand motor functions after a stroke?
This study is investigating whether neurofeedback training can improve hand movement after stroke. Participation involves attending 20 sessions at the University of Adelaide, during which participants imagine they extend their fingers and receive actual finger extension via a bionic hand involved with their fingers. People who have had a stroke at least 6 months ago, are able to understand auditory commands presented in English, and are independently mobile are invited to take part.
We are recruiting people with stroke who would like to participate in a therapy program that focuses on touch sensation and use of the hand. Potential participants should be adults (over 18 years of age) who have had a stroke and have altered feeling in their hand. Participants in the study will be asked to attend assessment and therapy appointments 14 times over a period of six months.
Goal setting to support stroke and brain injury rehabilitation and recovery
Researchers from Flinders University are seeking feedback about a goal-setting app, called RehabChat, which has been designed to support people with stroke or brain injury to set rehabilitation goals and achieve these. RehabChat was co-designed with clinicians and people with brain injury. Adults living with stroke or brain injury, their carers, family members, rehabilitation health professionals, and health students who have completed a clinical placement in rehabilitation are invited to take part in a feedback session in Adelaide.
Staying connected: using new technologies to personalise stroke recovery
This research project is being led by Professor Leeanne Carey from La Trobe University. It is testing tailored rehabilitation programs, guided by artificial intelligence (AI) and delivered in people's homes, to see whether they improve how well survivors of stroke recover the ability to do everyday activities at home. People who have had a stroke 3–18 months ago and have goals that involve using arms or hands are invited to take part. The study involves a 12-month period, with a clinical assessment at a research centre in Adelaide, Melbourne or Newcastle, and two 6-week therapy blocks delivered remotely.
This research project is testing a new treatment for improving recovery of balance and mobility. The study is led by Ashraf Gerges, Physiotherapist and PhD Candidate, from the University of South Australia. This study aims to assess whether combining non-invasive vagus nerve stimulation with physical rehabilitation can enhance the recovery of balance and mobility after stroke. It will also explore whether people find this treatment method acceptable, easy to use, and safe.
Can restorative brain-computer interfaces improve hand motor functions after a stroke?
This study is investigating whether neurofeedback training can improve hand movement after stroke. Participation involves attending 20 sessions at the University of Adelaide, during which participants imagine they extend their fingers and receive actual finger extension via a bionic hand involved with their fingers. People who have had a stroke at least 6 months ago, are able to understand auditory commands presented in English, and are independently mobile are invited to take part.
We are recruiting people with stroke who would like to participate in a therapy program that focuses on touch sensation and use of the hand. Potential participants should be adults (over 18 years of age) who have had a stroke and have altered feeling in their hand. Participants in the study will be asked to attend assessment and therapy appointments 14 times over a period of six months.
CPR and first aid for people who use a wheelchair
Do you use a wheelchair? Or do you care for a person or people who use a wheelchair? This study is looking at ways to provide CPR or first aid or choking care to wheelchair users. It is being conducted by Elisha Deegan, PhD candidate, School of Nursing and Midwifery at Western Sydney University. The study involves a 30–60 minute interview with the researcher by zoom, or phone, or face to face if located in Northern Tasmania.
PERsonalised Knowledge to reduce the risk of Stroke (PERKS-International)
This study is looking for people in Hobart who haven’t had a stroke, to compare two different ways of showing them their risk factors, which are things like diet, exercise and blood pressure. Knowing these lifestyle risk factors may help people to control them and reduce their risk of having a stroke. Participation will involve four online surveys and two face-to-face health checks.
CPR and first aid for people who use a wheelchair
Do you use a wheelchair? Or do you care for a person or people who use a wheelchair? This study is looking at ways to provide CPR or first aid or choking care to wheelchair users. It is being conducted by Elisha Deegan, PhD candidate, School of Nursing and Midwifery at Western Sydney University. The study involves a 30–60 minute interview with the researcher by zoom, or phone, or face to face if located in Northern Tasmania.
PERsonalised Knowledge to reduce the risk of Stroke (PERKS-International)
This study is looking for people in Hobart who haven’t had a stroke, to compare two different ways of showing them their risk factors, which are things like diet, exercise and blood pressure. Knowing these lifestyle risk factors may help people to control them and reduce their risk of having a stroke. Participation will involve four online surveys and two face-to-face health checks.
Staying connected: using new technologies to personalise stroke recovery
This research project is being led by Professor Leeanne Carey from La Trobe University. It is testing tailored rehabilitation programs, guided by artificial intelligence (AI) and delivered in people's homes, to see whether they improve how well survivors of stroke recover the ability to do everyday activities at home. People who have had a stroke 3–18 months ago and have goals that involve using arms or hands are invited to take part. The study involves a 12-month period, with a clinical assessment at a research centre in Adelaide, Melbourne or Newcastle, and two 6-week therapy blocks delivered remotely.
MedTechVic design sprint invitation for health care professionals
MedTechVic is hosting a series of workshops on behalf of Safer Care Victoria and the Australian Medtech Manufacturing Centre (AMMC), with the aim of engaging stakeholders in creative problem-solving to address complex challenges and ultimately improve health outcomes for all Australians. They are looking for healthcare professionals to draw on their experience of working in the healthcare system, to unpack key issues and ideate potential solutions.
Boosting arm recovery after stroke
This study from St Vincent's Health Network Sydney is investigating the delivery of constraint induced movement therapy (CIMT) via telehealth. CIMT is a proven effective therapy for arm recovery after stroke. Participation in this study involves completing an intensive 3-week rehabilitation program with your affected arm for at least 2 hours per day, and wearing a mitt on your non-affected arm at least 6 hours per day, to encourage use of your affected arm in daily life.
Nut supplementation to mitigate post-stroke cognitive decline (NUT-me): a pilot study
This study from Monash University is looking for people who have had a stroke in the past 6 months to examine if eating nuts regularly reduces post-stroke cognitive decline and dementia. The research will involve you eating a mix of nuts for 90 days and attending the Be Active Sleep Eat (BASE) facility in Notting Hill, Melbourne, on four occasions to complete a few questionnaires and a series of cognitive tests.
Regular physical activity is important for stroke recovery, reducing chances of another stroke, and keeping you healthy and strong! This phase I/IIA clinical trial from the University of Melbourne aims to find out how long you need to be active for each week and how hard you have to work while active to be beneficial for your health. We are looking for volunteers who are over 18 years old, have had a stroke within the past 6 months, and can walk with or without a gait aid. Health professionals will give you a personalised physical activity program and support you over 6 months. You will be given a Fitbit device to monitor and help support your physical activity.
UPLIFT trial: Integrated UPper limb and Language Impairment and Functional Training after stroke
Do you have difficulty using your arm and communicating after your stroke? The UPLIFT trial is recruiting people who are 3 to 24 months post-stroke and living in the community to test a new intensive rehabilitation program that trains arm movement and communication together. Depending on the amount of function you have, the program will be provided at home via telerehabilitation, or in person at a health clinic.
PERsonalised Knowledge to reduce the risk of Stroke (PERKS-International)
This study is looking for people in Melbourne (Clayton) who haven’t had a stroke, to compare two different ways of showing them their risk factors, which are things like diet, exercise and blood pressure. Knowing these lifestyle risk factors may help people to control them and reduce their risk of having a stroke. Participation will involve four online surveys and two face-to-face health checks.
We are recruiting people with stroke who would like to participate in a therapy program that focuses on touch sensation and use of the hand. Potential participants should be adults (over 18 years of age) who have had a stroke and have altered feeling in their hand. Participants in the study will be asked to attend assessment and therapy appointments 14 times over a period of six months.
Have you had a stroke or acquired brain injury (ABI) that has affected how you think and feel? Are you interested in learning ways to deal with these changes so you can do more of the things you value in life? Difficulties with memory and other thinking skills, along with changes in mood, can affect the capacity to do things that are meaningful and valued, such as work, leisure and social activities. VaLiANT is an 8-week group program located at La Trobe University in Bundoora (VIC), or run via telehealth (Zoom videoconferencing) during periods of Covid-related restrictions. Adults (aged 18 years or over) who have had a stroke at least 3 months ago can participate. The program is designed to increase your participation in activities that you value while helping you learn strategies for dealing with changes in thinking and mood. You are invited to participate in our research investigating the impact of participating in the group on the lives of people with ABI.
Staying connected: using new technologies to personalise stroke recovery
This research project is being led by Professor Leeanne Carey from La Trobe University. It is testing tailored rehabilitation programs, guided by artificial intelligence (AI) and delivered in people's homes, to see whether they improve how well survivors of stroke recover the ability to do everyday activities at home. People who have had a stroke 3–18 months ago and have goals that involve using arms or hands are invited to take part. The study involves a 12-month period, with a clinical assessment at a research centre in Adelaide, Melbourne or Newcastle, and two 6-week therapy blocks delivered remotely.
MedTechVic design sprint invitation for health care professionals
MedTechVic is hosting a series of workshops on behalf of Safer Care Victoria and the Australian Medtech Manufacturing Centre (AMMC), with the aim of engaging stakeholders in creative problem-solving to address complex challenges and ultimately improve health outcomes for all Australians. They are looking for healthcare professionals to draw on their experience of working in the healthcare system, to unpack key issues and ideate potential solutions.
Boosting arm recovery after stroke
This study from St Vincent's Health Network Sydney is investigating the delivery of constraint induced movement therapy (CIMT) via telehealth. CIMT is a proven effective therapy for arm recovery after stroke. Participation in this study involves completing an intensive 3-week rehabilitation program with your affected arm for at least 2 hours per day, and wearing a mitt on your non-affected arm at least 6 hours per day, to encourage use of your affected arm in daily life.
Nut supplementation to mitigate post-stroke cognitive decline (NUT-me): a pilot study
This study from Monash University is looking for people who have had a stroke in the past 6 months to examine if eating nuts regularly reduces post-stroke cognitive decline and dementia. The research will involve you eating a mix of nuts for 90 days and attending the Be Active Sleep Eat (BASE) facility in Notting Hill, Melbourne, on four occasions to complete a few questionnaires and a series of cognitive tests.
Regular physical activity is important for stroke recovery, reducing chances of another stroke, and keeping you healthy and strong! This phase I/IIA clinical trial from the University of Melbourne aims to find out how long you need to be active for each week and how hard you have to work while active to be beneficial for your health. We are looking for volunteers who are over 18 years old, have had a stroke within the past 6 months, and can walk with or without a gait aid. Health professionals will give you a personalised physical activity program and support you over 6 months. You will be given a Fitbit device to monitor and help support your physical activity.
UPLIFT trial: Integrated UPper limb and Language Impairment and Functional Training after stroke
Do you have difficulty using your arm and communicating after your stroke? The UPLIFT trial is recruiting people who are 3 to 24 months post-stroke and living in the community to test a new intensive rehabilitation program that trains arm movement and communication together. Depending on the amount of function you have, the program will be provided at home via telerehabilitation, or in person at a health clinic.
PERsonalised Knowledge to reduce the risk of Stroke (PERKS-International)
This study is looking for people in Melbourne (Clayton) who haven’t had a stroke, to compare two different ways of showing them their risk factors, which are things like diet, exercise and blood pressure. Knowing these lifestyle risk factors may help people to control them and reduce their risk of having a stroke. Participation will involve four online surveys and two face-to-face health checks.
We are recruiting people with stroke who would like to participate in a therapy program that focuses on touch sensation and use of the hand. Potential participants should be adults (over 18 years of age) who have had a stroke and have altered feeling in their hand. Participants in the study will be asked to attend assessment and therapy appointments 14 times over a period of six months.
Have you had a stroke or acquired brain injury (ABI) that has affected how you think and feel? Are you interested in learning ways to deal with these changes so you can do more of the things you value in life? Difficulties with memory and other thinking skills, along with changes in mood, can affect the capacity to do things that are meaningful and valued, such as work, leisure and social activities. VaLiANT is an 8-week group program located at La Trobe University in Bundoora (VIC), or run via telehealth (Zoom videoconferencing) during periods of Covid-related restrictions. Adults (aged 18 years or over) who have had a stroke at least 3 months ago can participate. The program is designed to increase your participation in activities that you value while helping you learn strategies for dealing with changes in thinking and mood. You are invited to participate in our research investigating the impact of participating in the group on the lives of people with ABI.
Environment enrichment for young stroke survivors
Cognitive problems are common in young stroke survivors and negatively impact quality of life. Researchers from Edith Cowan University are evaluating the benefits of a 12-week lifestyle program for young stroke survivors. The program includes physical activity, cognitive training and guidance on healthy eating and sleep. The program can be delivered remotely for people around Australia, including regional and remote areas.
UPLIFT trial: Integrated UPper limb and Language Impairment and Functional Training after stroke
Do you have difficulty using your arm and communicating after your stroke? The UPLIFT trial is recruiting people who are 3 to 24 months post-stroke and living in the community to test a new intensive rehabilitation program that trains arm movement and communication together. Depending on the amount of function you have, the program will be provided at home via telerehabilitation, or in person at a health clinic.
The relationship between thinking skills and daily functioning in adults with brain injuries
The University of Western Australia is researching how thinking skills following a brain injury like stroke affect how well people can do things such as work or hobbies. Participants will need to attend the University of Western Australia in Perth to have an assessment and complete questionnaires and tests, and attend a follow-up in three months’ time. Case managers or partners will also be invited to participate. A report about how participants went can be provided on request.
Environment enrichment for young stroke survivors
Cognitive problems are common in young stroke survivors and negatively impact quality of life. Researchers from Edith Cowan University are evaluating the benefits of a 12-week lifestyle program for young stroke survivors. The program includes physical activity, cognitive training and guidance on healthy eating and sleep. The program can be delivered remotely for people around Australia, including regional and remote areas.
UPLIFT trial: Integrated UPper limb and Language Impairment and Functional Training after stroke
Do you have difficulty using your arm and communicating after your stroke? The UPLIFT trial is recruiting people who are 3 to 24 months post-stroke and living in the community to test a new intensive rehabilitation program that trains arm movement and communication together. Depending on the amount of function you have, the program will be provided at home via telerehabilitation, or in person at a health clinic.
The relationship between thinking skills and daily functioning in adults with brain injuries
The University of Western Australia is researching how thinking skills following a brain injury like stroke affect how well people can do things such as work or hobbies. Participants will need to attend the University of Western Australia in Perth to have an assessment and complete questionnaires and tests, and attend a follow-up in three months’ time. Case managers or partners will also be invited to participate. A report about how participants went can be provided on request.
Duty of care and responsibility
- Stroke Foundation endeavours to ensure that all engagement through our research program is undertaken ethically and in line with our guiding principles. Reasonable checks are undertaken to ensure promoted projects have appropriate approval from a recognised body.
- Stroke Foundation is not responsible for externally administered research and is not liable for any claims concerning negligence, harm or oversight that might arise during the course of the research.
- Consent to take part and any questions or concerns regarding the research should be initially directed to the research team contacts provided.
- Stroke Foundation retains the right to remove listings/postings that do not meet the requisite criteria, and/or if complaints are received concerning the research project.
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