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Get involved in research

Survivors of stroke, families, carers and the community are central to stroke research.You can:

  • help direct research as part of the project team
  • share your views and experience
  • test new treatments to find out what works.

 

Getting involved in research may sometimes also allow you to access emerging therapy you wouldn’t otherwise be able to get. Involvement may also be part of your stroke recovery plan.

Stroke Foundation has an e-learning module to help you work well with stroke researchers.

Browse the list below to find projects relevant to you, in your area or online.

The Real Price of Health: experiences of out-of-pocket costs in Australia

Researchers from the College of Health and Medicine at the Australian National University are examining how people with chronic illnesses experience paying for certain health services or medicines, and the choices they make. The outcomes of this research will be used to inform Australian health policy and improve the equity of healthcare financing in Australia. If you live with a chronic illness, or are a carer or family member of someone living with a chronic illness, you are invited to participate an interview conducted either face-to-face or online. Participants will be remunerated for their time.

 

How should digitally delivered healthcare be funded?

This Griffith University study aims to build consensus on how digitally delivered health care should be funded, as well monitored and managed for people with chronic conditions. Consumer representatives, i.e., those who act for and on behalf of a consumer advocacy group or health services as a consumer, are invited to complete 4 online surveys. Each survey takes approximately 10–20 minutes.

 

Outcome prediction in intracerebral haemorrhage study (OPTICS)

Researchers from The George Institute are aiming to develop computer software using artificial intelligence (AI) to help doctors treat patients diagnosed with intracerebral haemorrhage (ICH) – a stroke caused by by sudden bleeding in the brain. The team want to speak to people connected to ICH in some way, to support the beginning of the research project by gathering perceptions, opinions, and openness towards a doctor using AI software in the prognosis and treatment process after ICH. Participants can opt for either an online survey or a focus group, or both.

 

Co-de Nuts: Co-designing nut intervention with post-stroke adults

This Monash University co-design study is exploring the feasibility of inclusion of nuts in daily diet for post-stroke adults.  The team hope this will provide strategies to tailor the incorporation of 30 g nuts into the daily diet of adults living with stroke, and inform the design for the next phase of the study. If you are an adult survivor of stroke, or a health professional who works with adult survivors of stroke, you're invited to take part in a 45-minute in-depth interview, via Zoom or face-to-face at Monash University Clayton Campus, VIC.

 

Acknowledging the contributions of people with lived experience in research outputs

Flinders University and the Health Translation SA Consumer Community Involvement Action Group would love your input to help them work out what is best practice to acknowledge lived-experience input on research papers and presentations. If you have advised or contributed to a research project from the perspective of someone with lived experience, or you have worked on a research project with someone with lived experience, you are invited to complete a 5–10 minute survey.

 

Adults with neurological conditions using graduated compression stockings

A University of Technology Sydney (UTS) research team is interested in the experiences using graduated compression stockings by people with mobility-impairing neurological conditions (such as stroke, spinal cord injury, cerebral palsy, multiple sclerosis, etc.). This will inform ongoing development and improvement in the performance, fit, comfort, function, and aesthetic aspects of current graduated compression stockings. Participants can choose to take part in any or all of the activities including an online survey and focus group, and measurements conducted at the UTS Central Campus.

 

Strive to Thrive at work after stroke

Researchers at Deakin University are trialling a new work support program and are looking for people who are working (paid or unpaid) after stroke. The program is designed to help people who have had a stroke identify what helps and hinders them at their work, and create a personalised action plan to manage the impact of the stroke on their day-to-day work life. The team want to see if Strive to Thrive is acceptable to a broader group of people who have had a stroke, and make further adjustments and improvements based on their feedback. Participants will take part in 5 x 1-hour Zoom sessions over approximately one month.

 

Online aphasia therapy trial

Researchers from La Trobe University are looking for people with aphasia to trial an online aphasia therapy called M-MAT Tele.

M-MAT Tele is a group therapy that aims to improve talking for people with aphasia.

A speech pathologist provides therapy to a group of three (3) people with aphasia.

You can take part if you have aphasia and can start therapy 3–6 months after your stroke.

You would receive thirty (30) hours of online therapy.

Therapy would be two hours per day, three days each week over five weeks.

 

Co-designing a multicultural digital stroke education program

University of Wollongong is conducting a research project called "Diverse Hearts – Co-designing a culturally tailored, evidence-based, digital education program to reduce stroke risk factors and promote mental well-being for people from culturally and linguistically diverse (CALD) communities." They are seeking people from Arabic, Dari, Chinese and Vietnamese-speaking communities who have high blood pressure, cholesterol, diabetes, or are a stroke survivor. They are also looking to speak to health professionals and people from non-government organisations who work with people from multicultural communities. Participation will involve interviews or focus group discussions, followed by reviews of the digital education modules.

 

Healthcare service experiences of young adults with stroke

This Monash University research project is exploring whether and how existing healthcare services in the community meet the needs of younger adults who have had a stroke. Participation is open to people who have had a stroke in the past 10 years, were aged 18–45 when they had their stroke, and have accessed healthcare services for their stroke-related needs; carers, family or other people who support a young adult with stroke; and clinicians who provide rehabilitation or allied health assessments or therapies for young adults who have had a stroke. Participation involves completing a questionnaire and a potential interview.

 

Addressing cognitive changes in stroke survivors

This Monash University research project is investigating health professionals' experience and perception of how cognition is managed after stroke. Specifically, the team will explore the perceived capability, opportunity and motivation of health professionals involved in stroke care to address cognition with stroke patients/clients. Australian health professionals currently working with stroke patients are invited to complete a 50-minute interview either remotely or in person.

 

FoCCuS4HEART: Female Carers Co-produce Support for Heart and Emotional health to Address Risk facTors – survey

Researchers from the University of Newcastle are conducting the FoCCuS4HEART project, which seeks to work with informal female carers of stroke survivors to develop strategies and tools to support carers to self-manage their emotional and physical health. If you’re a woman who provides care or has provided care to someone who has had a stroke, you can help by sharing your experiences in their survey.

 

FoCCuS4HEART: Female Carers Co-produce Support for Heart and Emotional health to Address Risk facTors – workshop

Researchers from the University of Newcastle are inviting female carers for someone who has had a stroke, to help design a program to help carers better manage their emotional and cardiovascular (heart, brain, and blood vessels) health while caregiving. Female carers aged 18 and over who are informal carers for someone who has had a stroke are eligible to participate. This study will involve workshops in person or online.

 

Observational study and registry – Systematic Profiling in Neurological Conditions

Researchers at Edith Cowan University are looking for people living with neurological conditions to contribute to an ongoing study. The SPIN Registry is set up as an observational study, consisting of comprehensive assessments. This involves collecting data about your physical status, lifestyle, and biological characteristics. We will use this data to identify and develop new tools to improve the quality of life. The Registry study is delivered remotely from the comfort of your own home. The researchers will send everything to you, and a cognition assessment will be conducted over a video call. The registry also serves as the first step to establish your eligibility for studies in the SPIN research program and, should you meet the criteria for trials developed in the future, you would be first in line to be offered the opportunity to participate in any newly developed interventions.

 

Fatigue-o-meter: A tool for post-stroke fatigue

If you have fatigue after stroke, or you support someone living with post-stroke fatigue, you might be interested in this study from the University of Newcastle. The research team is co-designing and testing an educational tool to help stroke survivors better manage their fatigue. Participation involves a videoconference meeting, in which survivors of stroke and their support crew will be asked to give feedback about key concepts of the tool and how it is presented.

 

Facilitators and barriers to clinical trial recruitment and retention of older people: A mixed-methods study

Researchers from The University of Sydney are conducting a study examining the thoughts and experiences of older people (aged 65 and over) who have taken part in a clinical trial.  If you have ever taken part in a clinical trial, you are invited to participate in a one-on-one interview to talk about your thoughts and experiences. It can be done face-to-face or via Zoom.

 

Returning to Work After Stroke in Rural Communities

Little is known about the experience of stroke survivors in rural and remote regions during the return to work journey and the barriers and facilitators in these settings. Understanding stroke survivors' experiences is vital information for service providers, workplaces and researchers to better support return to work. Participants will be asked to volunteer an hour of their time to talk about their experiences.

 

Emotional Health After Brain Injury

Have you experienced a brain injury? If so, you’re invited to participate in a study being run by researchers at the School of Psychological Science at the University of Western Australia.  This study involves completing a series of questionnaires, which may take approximately 30-45 minutes to complete.

 

Environment enrichment for young stroke survivors

Cognitive problems are common in young stroke survivors and negatively impact quality of life. Researchers from Edith Cowan University are evaluating the benefits of a 12-week lifestyle program for young stroke survivors. The program includes physical activity, cognitive training and guidance on healthy eating and sleep. The program can be delivered remotely for people around Australia, including regional and remote areas.

 

Feasibility and effects of novel light therapy in individuals with neurological conditions (stroke)

The study from Edith Cowan University aims to evaluate the feasibility and therapeutic effects of light therapy in combination with sleep health, compared to sleep health alone, in individuals experiencing post-stroke fatigue at least 3 months following a stroke. Eligible participants will be randomly assigned to receive light therapy with sleep health guidance, or sleep health guidance alone, for a 4-week period. Participants will be asked to complete questionnaires and wear an activity monitor prior to the commencement of the intervention, immediately following the intervention period and four weeks following the intervention period to evaluate fatigue, sleep health, mood and quality of life.

 

What helps people with aphasia and anxiety or depression after stroke

Researchers from the University of Technology Sydney and City, University of London are studying what helps people with aphasia and anxiety or depression after stroke. The study will involve monitoring your anxiety or depression for 4 weeks with a questionnaire, followed by 5 weeks of online video relaxation training, with follow-up phone calls or video meetings.

 

Teaching educators about acquired brain injury (Teach-ABI Australia)

The Murdoch Children's Research Institute and the University of Melbourne are looking for Australian primary school teachers, principals and other educators to provide their feedback on a novel online-learning module that aims to educate teaching professionals about paediatric acquired brain injury in the classroom. Participation in this study will involve a 2-hour session, completed remotely on Zoom, where participants will complete the online module and provide their feedback through an interview and a few short surveys.

 

Understanding the impact of Stroke on family - Surviving and Thriving AfteR Stroke (STARS)

The STARS team at the University of Technology Sydney want to understand the impact of stroke on families. We also want to identify current practices stroke clinicians use to support families where a parent has a stroke, gaps, barriers and facilitators to providing optimal care. We want to interview all family members where a parent has had a stroke, including parents, co-parents and children (3–18 years old). Families can live anywhere in Australia. We can interview families online and where possible, in person. Stroke clinicians can also join focus groups or interviews to share their experiences of providing services to families where a parent has had a stroke.

 

Carer-supported home exercise program to improve exercise participation for people after stroke

Researchers at the University of Tasmania are looking into exercise behaviour and exercise preferences of stroke survivors living at home, with the aim of developing a carer-supported exercise program that can be completed in your own home. It is important we get information from stroke survivors and carers themselves to make sure the developed program is targeting your needs. The survey may take around 15 minutes to complete. The survey results will be anonymous and completely confidential.

 

Dysphagia telerehabilitation program for stroke survivors living in the community

This research study from the University of Sydney is about swallowing therapy via telehealth. Taking part in this study is voluntary. The research team are inviting people who had a stroke more than 6 months ago and have swallowing difficulties to participate.

 

UPLIFT trial: Integrated UPper limb and Language Impairment and Functional Training after stroke

Do you have difficulty using your arm and communicating after your stroke? The UPLIFT trial is recruiting people who are 3 to 24 months post-stroke and living in the community to test a new intensive rehabilitation program that trains arm movement and communication together. Depending on the amount of function you have, the program will be provided at home via telerehabilitation, or in person at a health clinic.

 

Development of a sexuality intervention for stroke survivors and their partners

4 out of 5 Australian stroke survivors do not have the opportunity to discuss sexuality or receive information about sexuality. Sexuality is more than just about 'having sex', it also includes roles and identities, relationships and intimacy. Researchers from The University of Sydney would like to develop an educational package that can be provided to stroke survivors and partners of stroke survivors. The study aims to find out what topics should be included in this package and how it should be delivered. If you choose to participate you will be asked to complete two surveys about what you think is important for sexuality after stroke. Your responses are confidential and you will not be asked to share any information about your own experiences of sexuality.

 

The Real Price of Health: experiences of out-of-pocket costs in Australia

Researchers from the College of Health and Medicine at the Australian National University are examining how people with chronic illnesses experience paying for certain health services or medicines, and the choices they make. The outcomes of this research will be used to inform Australian health policy and improve the equity of healthcare financing in Australia. If you live with a chronic illness, or are a carer or family member of someone living with a chronic illness, you are invited to participate an interview conducted either face-to-face or online. Participants will be remunerated for their time.

 

How should digitally delivered healthcare be funded?

This Griffith University study aims to build consensus on how digitally delivered health care should be funded, as well monitored and managed for people with chronic conditions. Consumer representatives, i.e., those who act for and on behalf of a consumer advocacy group or health services as a consumer, are invited to complete 4 online surveys. Each survey takes approximately 10–20 minutes.

 

Outcome prediction in intracerebral haemorrhage study (OPTICS)

Researchers from The George Institute are aiming to develop computer software using artificial intelligence (AI) to help doctors treat patients diagnosed with intracerebral haemorrhage (ICH) – a stroke caused by by sudden bleeding in the brain. The team want to speak to people connected to ICH in some way, to support the beginning of the research project by gathering perceptions, opinions, and openness towards a doctor using AI software in the prognosis and treatment process after ICH. Participants can opt for either an online survey or a focus group, or both.

 

Co-de Nuts: Co-designing nut intervention with post-stroke adults

This Monash University co-design study is exploring the feasibility of inclusion of nuts in daily diet for post-stroke adults.  The team hope this will provide strategies to tailor the incorporation of 30 g nuts into the daily diet of adults living with stroke, and inform the design for the next phase of the study. If you are an adult survivor of stroke, or a health professional who works with adult survivors of stroke, you're invited to take part in a 45-minute in-depth interview, via Zoom or face-to-face at Monash University Clayton Campus, VIC.

 

Acknowledging the contributions of people with lived experience in research outputs

Flinders University and the Health Translation SA Consumer Community Involvement Action Group would love your input to help them work out what is best practice to acknowledge lived-experience input on research papers and presentations. If you have advised or contributed to a research project from the perspective of someone with lived experience, or you have worked on a research project with someone with lived experience, you are invited to complete a 5–10 minute survey.

 

Adults with neurological conditions using graduated compression stockings

A University of Technology Sydney (UTS) research team is interested in the experiences using graduated compression stockings by people with mobility-impairing neurological conditions (such as stroke, spinal cord injury, cerebral palsy, multiple sclerosis, etc.). This will inform ongoing development and improvement in the performance, fit, comfort, function, and aesthetic aspects of current graduated compression stockings. Participants can choose to take part in any or all of the activities including an online survey and focus group, and measurements conducted at the UTS Central Campus.

 

Strive to Thrive at work after stroke

Researchers at Deakin University are trialling a new work support program and are looking for people who are working (paid or unpaid) after stroke. The program is designed to help people who have had a stroke identify what helps and hinders them at their work, and create a personalised action plan to manage the impact of the stroke on their day-to-day work life. The team want to see if Strive to Thrive is acceptable to a broader group of people who have had a stroke, and make further adjustments and improvements based on their feedback. Participants will take part in 5 x 1-hour Zoom sessions over approximately one month.

 

Online aphasia therapy trial

Researchers from La Trobe University are looking for people with aphasia to trial an online aphasia therapy called M-MAT Tele.

M-MAT Tele is a group therapy that aims to improve talking for people with aphasia.

A speech pathologist provides therapy to a group of three (3) people with aphasia.

You can take part if you have aphasia and can start therapy 3–6 months after your stroke.

You would receive thirty (30) hours of online therapy.

Therapy would be two hours per day, three days each week over five weeks.

 

Co-designing a multicultural digital stroke education program

University of Wollongong is conducting a research project called "Diverse Hearts – Co-designing a culturally tailored, evidence-based, digital education program to reduce stroke risk factors and promote mental well-being for people from culturally and linguistically diverse (CALD) communities." They are seeking people from Arabic, Dari, Chinese and Vietnamese-speaking communities who have high blood pressure, cholesterol, diabetes, or are a stroke survivor. They are also looking to speak to health professionals and people from non-government organisations who work with people from multicultural communities. Participation will involve interviews or focus group discussions, followed by reviews of the digital education modules.

 

Healthcare service experiences of young adults with stroke

This Monash University research project is exploring whether and how existing healthcare services in the community meet the needs of younger adults who have had a stroke. Participation is open to people who have had a stroke in the past 10 years, were aged 18–45 when they had their stroke, and have accessed healthcare services for their stroke-related needs; carers, family or other people who support a young adult with stroke; and clinicians who provide rehabilitation or allied health assessments or therapies for young adults who have had a stroke. Participation involves completing a questionnaire and a potential interview.

 

Addressing cognitive changes in stroke survivors

This Monash University research project is investigating health professionals' experience and perception of how cognition is managed after stroke. Specifically, the team will explore the perceived capability, opportunity and motivation of health professionals involved in stroke care to address cognition with stroke patients/clients. Australian health professionals currently working with stroke patients are invited to complete a 50-minute interview either remotely or in person.

 

FoCCuS4HEART: Female Carers Co-produce Support for Heart and Emotional health to Address Risk facTors – survey

Researchers from the University of Newcastle are conducting the FoCCuS4HEART project, which seeks to work with informal female carers of stroke survivors to develop strategies and tools to support carers to self-manage their emotional and physical health. If you’re a woman who provides care or has provided care to someone who has had a stroke, you can help by sharing your experiences in their survey.

 

FoCCuS4HEART: Female Carers Co-produce Support for Heart and Emotional health to Address Risk facTors – workshop

Researchers from the University of Newcastle are inviting female carers for someone who has had a stroke, to help design a program to help carers better manage their emotional and cardiovascular (heart, brain, and blood vessels) health while caregiving. Female carers aged 18 and over who are informal carers for someone who has had a stroke are eligible to participate. This study will involve workshops in person or online.

 

Observational study and registry – Systematic Profiling in Neurological Conditions

Researchers at Edith Cowan University are looking for people living with neurological conditions to contribute to an ongoing study. The SPIN Registry is set up as an observational study, consisting of comprehensive assessments. This involves collecting data about your physical status, lifestyle, and biological characteristics. We will use this data to identify and develop new tools to improve the quality of life. The Registry study is delivered remotely from the comfort of your own home. The researchers will send everything to you, and a cognition assessment will be conducted over a video call. The registry also serves as the first step to establish your eligibility for studies in the SPIN research program and, should you meet the criteria for trials developed in the future, you would be first in line to be offered the opportunity to participate in any newly developed interventions.

 

Fatigue-o-meter: A tool for post-stroke fatigue

If you have fatigue after stroke, or you support someone living with post-stroke fatigue, you might be interested in this study from the University of Newcastle. The research team is co-designing and testing an educational tool to help stroke survivors better manage their fatigue. Participation involves a videoconference meeting, in which survivors of stroke and their support crew will be asked to give feedback about key concepts of the tool and how it is presented.

 

Facilitators and barriers to clinical trial recruitment and retention of older people: A mixed-methods study

Researchers from The University of Sydney are conducting a study examining the thoughts and experiences of older people (aged 65 and over) who have taken part in a clinical trial.  If you have ever taken part in a clinical trial, you are invited to participate in a one-on-one interview to talk about your thoughts and experiences. It can be done face-to-face or via Zoom.

 

Returning to Work After Stroke in Rural Communities

Little is known about the experience of stroke survivors in rural and remote regions during the return to work journey and the barriers and facilitators in these settings. Understanding stroke survivors' experiences is vital information for service providers, workplaces and researchers to better support return to work. Participants will be asked to volunteer an hour of their time to talk about their experiences.

 

Emotional Health After Brain Injury

Have you experienced a brain injury? If so, you’re invited to participate in a study being run by researchers at the School of Psychological Science at the University of Western Australia.  This study involves completing a series of questionnaires, which may take approximately 30-45 minutes to complete.

 

Environment enrichment for young stroke survivors

Cognitive problems are common in young stroke survivors and negatively impact quality of life. Researchers from Edith Cowan University are evaluating the benefits of a 12-week lifestyle program for young stroke survivors. The program includes physical activity, cognitive training and guidance on healthy eating and sleep. The program can be delivered remotely for people around Australia, including regional and remote areas.

 

Feasibility and effects of novel light therapy in individuals with neurological conditions (stroke)

The study from Edith Cowan University aims to evaluate the feasibility and therapeutic effects of light therapy in combination with sleep health, compared to sleep health alone, in individuals experiencing post-stroke fatigue at least 3 months following a stroke. Eligible participants will be randomly assigned to receive light therapy with sleep health guidance, or sleep health guidance alone, for a 4-week period. Participants will be asked to complete questionnaires and wear an activity monitor prior to the commencement of the intervention, immediately following the intervention period and four weeks following the intervention period to evaluate fatigue, sleep health, mood and quality of life.

 

What helps people with aphasia and anxiety or depression after stroke

Researchers from the University of Technology Sydney and City, University of London are studying what helps people with aphasia and anxiety or depression after stroke. The study will involve monitoring your anxiety or depression for 4 weeks with a questionnaire, followed by 5 weeks of online video relaxation training, with follow-up phone calls or video meetings.

 

Teaching educators about acquired brain injury (Teach-ABI Australia)

The Murdoch Children's Research Institute and the University of Melbourne are looking for Australian primary school teachers, principals and other educators to provide their feedback on a novel online-learning module that aims to educate teaching professionals about paediatric acquired brain injury in the classroom. Participation in this study will involve a 2-hour session, completed remotely on Zoom, where participants will complete the online module and provide their feedback through an interview and a few short surveys.

 

Understanding the impact of Stroke on family - Surviving and Thriving AfteR Stroke (STARS)

The STARS team at the University of Technology Sydney want to understand the impact of stroke on families. We also want to identify current practices stroke clinicians use to support families where a parent has a stroke, gaps, barriers and facilitators to providing optimal care. We want to interview all family members where a parent has had a stroke, including parents, co-parents and children (3–18 years old). Families can live anywhere in Australia. We can interview families online and where possible, in person. Stroke clinicians can also join focus groups or interviews to share their experiences of providing services to families where a parent has had a stroke.

 

Carer-supported home exercise program to improve exercise participation for people after stroke

Researchers at the University of Tasmania are looking into exercise behaviour and exercise preferences of stroke survivors living at home, with the aim of developing a carer-supported exercise program that can be completed in your own home. It is important we get information from stroke survivors and carers themselves to make sure the developed program is targeting your needs. The survey may take around 15 minutes to complete. The survey results will be anonymous and completely confidential.

 

Dysphagia telerehabilitation program for stroke survivors living in the community

This research study from the University of Sydney is about swallowing therapy via telehealth. Taking part in this study is voluntary. The research team are inviting people who had a stroke more than 6 months ago and have swallowing difficulties to participate.

 

UPLIFT trial: Integrated UPper limb and Language Impairment and Functional Training after stroke

Do you have difficulty using your arm and communicating after your stroke? The UPLIFT trial is recruiting people who are 3 to 24 months post-stroke and living in the community to test a new intensive rehabilitation program that trains arm movement and communication together. Depending on the amount of function you have, the program will be provided at home via telerehabilitation, or in person at a health clinic.

 

Development of a sexuality intervention for stroke survivors and their partners

4 out of 5 Australian stroke survivors do not have the opportunity to discuss sexuality or receive information about sexuality. Sexuality is more than just about 'having sex', it also includes roles and identities, relationships and intimacy. Researchers from The University of Sydney would like to develop an educational package that can be provided to stroke survivors and partners of stroke survivors. The study aims to find out what topics should be included in this package and how it should be delivered. If you choose to participate you will be asked to complete two surveys about what you think is important for sexuality after stroke. Your responses are confidential and you will not be asked to share any information about your own experiences of sexuality.

 

Cardiac Rehabilitation for transient ischaemic Attack and Mild Stroke: the CRAMS randomised controlled trial

Cardiac rehabilitation is a well-established and widely available secondary prevention program that could help prevent repeat strokes. However, our research has found that less than 2% of Australian cardiac rehabilitation programs include people with stroke. The University of Canberra (UC), Canberra Health Services and Calvary Public Hospital, supported by Stroke Foundation and Heart Foundation, are seeking 140 Canberrans who have had a TIA or mild stroke over 2 years to investigate the effectiveness of a 6-week integrated cardiovascular rehabilitation program. Participants will be randomly allocated to the cardiovascular rehabilitation program or a 6-month wait-list group.

 

Cardiac Rehabilitation for transient ischaemic Attack and Mild Stroke: the CRAMS randomised controlled trial

Cardiac rehabilitation is a well-established and widely available secondary prevention program that could help prevent repeat strokes. However, our research has found that less than 2% of Australian cardiac rehabilitation programs include people with stroke. The University of Canberra (UC), Canberra Health Services and Calvary Public Hospital, supported by Stroke Foundation and Heart Foundation, are seeking 140 Canberrans who have had a TIA or mild stroke over 2 years to investigate the effectiveness of a 6-week integrated cardiovascular rehabilitation program. Participants will be randomly allocated to the cardiovascular rehabilitation program or a 6-month wait-list group.

 

Outcome prediction in intracerebral haemorrhage study (OPTICS)

Researchers from The George Institute are aiming to develop computer software using artificial intelligence (AI) to help doctors treat patients diagnosed with intracerebral haemorrhage (ICH) – a stroke caused by by sudden bleeding in the brain. The team want to speak to people connected to ICH in some way, to support the beginning of the research project by gathering perceptions, opinions, and openness towards a doctor using AI software in the prognosis and treatment process after ICH. Participants can opt for either an online survey or a focus group, or both.

 

Adults with neurological conditions using graduated compression stockings

A University of Technology Sydney (UTS) research team is interested in the experiences using graduated compression stockings by people with mobility-impairing neurological conditions (such as stroke, spinal cord injury, cerebral palsy, multiple sclerosis, etc.). This will inform ongoing development and improvement in the performance, fit, comfort, function, and aesthetic aspects of current graduated compression stockings. Participants can choose to take part in any or all of the activities including an online survey and focus group, and measurements conducted at the UTS Central Campus.

 

Boosting arm recovery after stroke

This study from St Vincent's Health Network Sydney is investigating the delivery of constraint induced movement therapy (CIMT) via telehealth. CIMT is a proven effective therapy for arm recovery after stroke. Participation in this study involves completing an intensive 3-week rehabilitation program with your affected arm for at least 2 hours per day, and wearing a mitt on your non-affected arm at least 6 hours per day, to encourage use of your affected arm in daily life.

 

Exercising, Socialising, and Thinking: an Environmental Enrichment Model in the community after stroke (ESTEEM)

The ESTEEM program from the Hunter Medical Research Institute (HMRI), the University of Newcastle and Hunter New England Local Health District enables stroke survivors to exercise, socialise, and participate in art-based thinking activities delivered by community-based care providers. Stroke survivors aged 18 and above, living in the community, who can communicate and independently move (or with the assistance of one person) are invited to participate. Participation will involve attending a program twice a week for a total of 10 weeks, with 30 minutes of exercise, followed by 20 minutes of socialising, and 90 minutes of creative thinking activities, each delivered by a qualified professional.

 

FoCCuS4HEART: Female Carers Co-produce Support for Heart and Emotional health to Address Risk facTors

Researchers from the University of Newcastle are inviting female carers for someone who has had a stroke, to help design a program to help carers better manage their emotional and cardiovascular (heart, brain, and blood vessels) health while caregiving. Female carers aged 18 and over who are informal carers for someone who has had a stroke are eligible to participate. This study will involve workshops in person or online.

 

HiWalk mobility booster program

Does your walking need a boost after stroke? Senior researchers from Macquarie, Monash and Sydney Universities are seeking participants to trial a physiotherapy-led program to improve walking in people after stroke. The program involves attending a rehabilitation gym for up to 3 hours, on weekdays for 3 weeks. You are eligible if you're an adult, you had a stroke more than 6 months but less than 8 years ago, you can walk 10 metres without assistance, and you have adequate English language and cognitive skills to participate.

 

Motion analysis for upper limb impairment (FULMA)

This study from the George Institute aims to develop a new technology that will capture and analyse upper limb movement, to help occupational therapists and physiotherapists conduct improved clinical assessments for people who have had a stroke. The study will involve attending the Department of Rehabilitation Medicine at the Prince of Wales Hospital, Randwick.

 

Validation of the Nine Hole Peg Test administered via telehealth with stroke survivors

Are you a survivor of stroke, based in Sydney or Melbourne, with ongoing challenges using your affected hand? This study from St Vincent's Health Network will examine the administration of assessments for the hand and arm via telehealth. Participants can be seen either at home, or onsite in Auburn, Melbourne or Darlinghurst, Sydney.

 

MIDAS 2: Modafinil In Debilitating Fatigue After Stroke 2

This study is recruiting community-dwelling stroke survivors who are experiencing persistent and non-resolving fatigue 3 or more months after their stroke, to test whether modafinil significantly improves participant quality of life compared to placebo. Participants will be randomised to either modafinil (200 mg daily) or an identical placebo for 56 days.

 

Network of sites and 'up-skilled' therapists to deliver best-practice stroke rehabilitation of the upper limb

We are recruiting people with stroke who would like to participate in a therapy program that focuses on touch sensation and use of the hand. Potential participants should be adults (over 18 years of age) who have had a stroke and have altered feeling in their hand. Participants in the study will be asked to attend assessment and therapy appointments 14 times over a period of six months.

 

 

Outcome prediction in intracerebral haemorrhage study (OPTICS)

Researchers from The George Institute are aiming to develop computer software using artificial intelligence (AI) to help doctors treat patients diagnosed with intracerebral haemorrhage (ICH) – a stroke caused by by sudden bleeding in the brain. The team want to speak to people connected to ICH in some way, to support the beginning of the research project by gathering perceptions, opinions, and openness towards a doctor using AI software in the prognosis and treatment process after ICH. Participants can opt for either an online survey or a focus group, or both.

 

Adults with neurological conditions using graduated compression stockings

A University of Technology Sydney (UTS) research team is interested in the experiences using graduated compression stockings by people with mobility-impairing neurological conditions (such as stroke, spinal cord injury, cerebral palsy, multiple sclerosis, etc.). This will inform ongoing development and improvement in the performance, fit, comfort, function, and aesthetic aspects of current graduated compression stockings. Participants can choose to take part in any or all of the activities including an online survey and focus group, and measurements conducted at the UTS Central Campus.

 

Boosting arm recovery after stroke

This study from St Vincent's Health Network Sydney is investigating the delivery of constraint induced movement therapy (CIMT) via telehealth. CIMT is a proven effective therapy for arm recovery after stroke. Participation in this study involves completing an intensive 3-week rehabilitation program with your affected arm for at least 2 hours per day, and wearing a mitt on your non-affected arm at least 6 hours per day, to encourage use of your affected arm in daily life.

 

Exercising, Socialising, and Thinking: an Environmental Enrichment Model in the community after stroke (ESTEEM)

The ESTEEM program from the Hunter Medical Research Institute (HMRI), the University of Newcastle and Hunter New England Local Health District enables stroke survivors to exercise, socialise, and participate in art-based thinking activities delivered by community-based care providers. Stroke survivors aged 18 and above, living in the community, who can communicate and independently move (or with the assistance of one person) are invited to participate. Participation will involve attending a program twice a week for a total of 10 weeks, with 30 minutes of exercise, followed by 20 minutes of socialising, and 90 minutes of creative thinking activities, each delivered by a qualified professional.

 

FoCCuS4HEART: Female Carers Co-produce Support for Heart and Emotional health to Address Risk facTors

Researchers from the University of Newcastle are inviting female carers for someone who has had a stroke, to help design a program to help carers better manage their emotional and cardiovascular (heart, brain, and blood vessels) health while caregiving. Female carers aged 18 and over who are informal carers for someone who has had a stroke are eligible to participate. This study will involve workshops in person or online.

 

HiWalk mobility booster program

Does your walking need a boost after stroke? Senior researchers from Macquarie, Monash and Sydney Universities are seeking participants to trial a physiotherapy-led program to improve walking in people after stroke. The program involves attending a rehabilitation gym for up to 3 hours, on weekdays for 3 weeks. You are eligible if you're an adult, you had a stroke more than 6 months but less than 8 years ago, you can walk 10 metres without assistance, and you have adequate English language and cognitive skills to participate.

 

Motion analysis for upper limb impairment (FULMA)

This study from the George Institute aims to develop a new technology that will capture and analyse upper limb movement, to help occupational therapists and physiotherapists conduct improved clinical assessments for people who have had a stroke. The study will involve attending the Department of Rehabilitation Medicine at the Prince of Wales Hospital, Randwick.

 

Validation of the Nine Hole Peg Test administered via telehealth with stroke survivors

Are you a survivor of stroke, based in Sydney or Melbourne, with ongoing challenges using your affected hand? This study from St Vincent's Health Network will examine the administration of assessments for the hand and arm via telehealth. Participants can be seen either at home, or onsite in Auburn, Melbourne or Darlinghurst, Sydney.

 

MIDAS 2: Modafinil In Debilitating Fatigue After Stroke 2

This study is recruiting community-dwelling stroke survivors who are experiencing persistent and non-resolving fatigue 3 or more months after their stroke, to test whether modafinil significantly improves participant quality of life compared to placebo. Participants will be randomised to either modafinil (200 mg daily) or an identical placebo for 56 days.

 

Network of sites and 'up-skilled' therapists to deliver best-practice stroke rehabilitation of the upper limb

We are recruiting people with stroke who would like to participate in a therapy program that focuses on touch sensation and use of the hand. Potential participants should be adults (over 18 years of age) who have had a stroke and have altered feeling in their hand. Participants in the study will be asked to attend assessment and therapy appointments 14 times over a period of six months.

 

 

There are currently no research projects listed for the Northern Territory. Please check the National tab for projects recruiting Australia-wide.

 

There are currently no research projects listed for the Northern Territory. Please check the National tab for projects recruiting Australia-wide.

 

UPLIFT trial: Integrated UPper limb and Language Impairment and Functional Training after stroke

Do you have difficulty using your arm and communicating after your stroke? The UPLIFT trial is recruiting people who are 3 to 24 months post-stroke and living in the community to test a new intensive rehabilitation program that trains arm movement and communication together. Depending on the amount of function you have, the program will be provided at home via telerehabilitation, or in person at a health clinic.

 

UPLIFT trial: Integrated UPper limb and Language Impairment and Functional Training after stroke

Do you have difficulty using your arm and communicating after your stroke? The UPLIFT trial is recruiting people who are 3 to 24 months post-stroke and living in the community to test a new intensive rehabilitation program that trains arm movement and communication together. Depending on the amount of function you have, the program will be provided at home via telerehabilitation, or in person at a health clinic.

 

The effect of non-invasive auricular vagus nerve stimulation paired with rehabilitation on gait and balance impairments in chronic stroke: A randomised controlled feasibility trial

This research project is testing a new treatment for improving recovery of balance and mobility. The study is led by Ashraf Gerges, Physiotherapist and PhD Candidate, from the University of South Australia.  This study aims to assess whether combining non-invasive vagus nerve stimulation with physical rehabilitation can enhance the recovery of balance and mobility after stroke. It will also explore whether people find this treatment method acceptable, easy to use, and safe.

 

Brain stimulation for post-stroke aphasia

Repetitive transcranial magnetic stimulation (rTMS) is a method to increase activity of the brain after stroke. This technique is safe and non-invasive, and has shown early promising results as a treatment for aphasia, but we need further experiments to understand its physiological and behavioural effects. We are looking for participants within the Greater Adelaide area to attend 3 in-person sessions at the University of Adelaide, 2 of which will involve rTMS.

 

Establishing an intensive, high dose, stroke recovery student-led clinic to improve upper limb outcomes

This research from the University of South Australia is exploring new ways of delivering stroke rehabilitation so that people in the community can access high-quality health care. The purpose of this study is to evaluate a burst of intensive training for arm recovery. People who have experienced a stroke and whose arm has not fully recovered are invited to participate in a total of 90 hours of therapy over a 5-week period.

 

MIDAS 2: Modafinil In Debilitating Fatigue After Stroke 2

This study is recruiting community-dwelling stroke survivors who are experiencing persistent and non-resolving fatigue 3 or more months after their stroke, to test whether modafinil significantly improves participant quality of life compared to placebo. Participants will be randomised to either modafinil (200 mg daily) or an identical placebo for 56 days.

 

Can restorative brain-computer interfaces improve hand motor functions after a stroke?

This study is investigating whether neurofeedback training can improve hand movement after stroke. Participation involves attending 20 sessions at the University of Adelaide, during which participants imagine they extend their fingers and receive actual finger extension via a bionic hand involved with their fingers. People who have had a stroke at least 6 months ago, are able to understand auditory commands presented in English, and are independently mobile are invited to take part.

 

Network of sites and 'up-skilled' therapists to deliver best-practice stroke rehabilitation of the upper limb

We are recruiting people with stroke who would like to participate in a therapy program that focuses on touch sensation and use of the hand. Potential participants should be adults (over 18 years of age) who have had a stroke and have altered feeling in their hand. Participants in the study will be asked to attend assessment and therapy appointments 14 times over a period of six months.

 

The effect of non-invasive auricular vagus nerve stimulation paired with rehabilitation on gait and balance impairments in chronic stroke: A randomised controlled feasibility trial

This research project is testing a new treatment for improving recovery of balance and mobility. The study is led by Ashraf Gerges, Physiotherapist and PhD Candidate, from the University of South Australia.  This study aims to assess whether combining non-invasive vagus nerve stimulation with physical rehabilitation can enhance the recovery of balance and mobility after stroke. It will also explore whether people find this treatment method acceptable, easy to use, and safe.

 

Brain stimulation for post-stroke aphasia

Repetitive transcranial magnetic stimulation (rTMS) is a method to increase activity of the brain after stroke. This technique is safe and non-invasive, and has shown early promising results as a treatment for aphasia, but we need further experiments to understand its physiological and behavioural effects. We are looking for participants within the Greater Adelaide area to attend 3 in-person sessions at the University of Adelaide, 2 of which will involve rTMS.

 

Establishing an intensive, high dose, stroke recovery student-led clinic to improve upper limb outcomes

This research from the University of South Australia is exploring new ways of delivering stroke rehabilitation so that people in the community can access high-quality health care. The purpose of this study is to evaluate a burst of intensive training for arm recovery. People who have experienced a stroke and whose arm has not fully recovered are invited to participate in a total of 90 hours of therapy over a 5-week period.

 

MIDAS 2: Modafinil In Debilitating Fatigue After Stroke 2

This study is recruiting community-dwelling stroke survivors who are experiencing persistent and non-resolving fatigue 3 or more months after their stroke, to test whether modafinil significantly improves participant quality of life compared to placebo. Participants will be randomised to either modafinil (200 mg daily) or an identical placebo for 56 days.

 

Can restorative brain-computer interfaces improve hand motor functions after a stroke?

This study is investigating whether neurofeedback training can improve hand movement after stroke. Participation involves attending 20 sessions at the University of Adelaide, during which participants imagine they extend their fingers and receive actual finger extension via a bionic hand involved with their fingers. People who have had a stroke at least 6 months ago, are able to understand auditory commands presented in English, and are independently mobile are invited to take part.

 

Network of sites and 'up-skilled' therapists to deliver best-practice stroke rehabilitation of the upper limb

We are recruiting people with stroke who would like to participate in a therapy program that focuses on touch sensation and use of the hand. Potential participants should be adults (over 18 years of age) who have had a stroke and have altered feeling in their hand. Participants in the study will be asked to attend assessment and therapy appointments 14 times over a period of six months.

 

PERsonalised Knowledge to reduce the risk of Stroke (PERKS-International)

This study is looking for people in Hobart who haven’t had a stroke, to compare two different ways of showing them their risk factors, which are things like diet, exercise and blood pressure. Knowing these lifestyle risk factors may help people to control them and reduce their risk of having a stroke. Participation will involve four online surveys and two face-to-face health checks.

 

PERsonalised Knowledge to reduce the risk of Stroke (PERKS-International)

This study is looking for people in Hobart who haven’t had a stroke, to compare two different ways of showing them their risk factors, which are things like diet, exercise and blood pressure. Knowing these lifestyle risk factors may help people to control them and reduce their risk of having a stroke. Participation will involve four online surveys and two face-to-face health checks.

 

Co-de Nuts: Co-designing nut intervention with post-stroke adults

This Monash University co-design study is exploring the feasibility of inclusion of nuts in daily diet for post-stroke adults.  The team hope this will provide strategies to tailor the incorporation of 30 g nuts into the daily diet of adults living with stroke, and inform the design for the next phase of the study. If you are an adult survivor of stroke, or a health professional who works with adult survivors of stroke, you're invited to take part in a 45-minute in-depth interview, via Zoom or face-to-face at Monash University Clayton Campus, VIC.

 

MedTechVic design sprint invitation for health care professionals

MedTechVic is hosting a series of workshops on behalf of Safer Care Victoria and the Australian Medtech Manufacturing Centre (AMMC), with the aim of engaging stakeholders in creative problem-solving to address complex challenges and ultimately improve health outcomes for all Australians. They are looking for healthcare professionals to draw on their experience of working in the healthcare system, to unpack key issues and ideate potential solutions.

 

Addressing cognitive changes in stroke survivors

This Monash University research project is investigating health professionals' experience and perception of how cognition is managed after stroke. Specifically, the team will explore the perceived capability, opportunity and motivation of health professionals involved in stroke care to address cognition with stroke patients/clients. Australian health professionals currently working with stroke patients are invited to complete a 50-minute interview either remotely or in person.

 

Boosting arm recovery after stroke

This study from St Vincent's Health Network Sydney is investigating the delivery of constraint induced movement therapy (CIMT) via telehealth. CIMT is a proven effective therapy for arm recovery after stroke. Participation in this study involves completing an intensive 3-week rehabilitation program with your affected arm for at least 2 hours per day, and wearing a mitt on your non-affected arm at least 6 hours per day, to encourage use of your affected arm in daily life.

 

Nut supplementation to mitigate post-stroke cognitive decline (NUT-me): a pilot study

This study from Monash University is looking for people who have had a stroke in the past 6 months to examine if eating nuts regularly reduces post-stroke cognitive decline and dementia. The research will involve you eating a mix of nuts for 90 days and attending the Be Active Sleep Eat (BASE) facility in Notting Hill, Melbourne, on four occasions to complete a few questionnaires and a series of cognitive tests.

 

HiWalk mobility booster program

Does your walking need a boost after stroke? Senior researchers from Macquarie, Monash and Sydney Universities are seeking participants to trial a physiotherapy-led program to improve walking in people after stroke. The program involves attending a rehabilitation gym for up to 3 hours, on weekdays for 3 weeks. You are eligible if you're an adult, you had a stroke more than 6 months but less than 8 years ago, you can walk 10 metres without assistance, and you have adequate English language and cognitive skills to participate.

 

Post Stroke Exercise Study (PISCES)

This Monash University study is exploring the effects of exercise on brain volume and thinking (cognition). The researchers are looking for people over 18-years-old who have had an ischaemic stroke in the past 2 months to participate in an 8-week, home-based exercise program, delivered via telehealth telehealth (live video call) using a device we will provide for you. We will also need to see you in person for an initial test including MRI scan, and at 4 months and 12 months after your stroke.

 

Fit 4 Me After Stroke

Regular physical activity is important for stroke recovery, reducing chances of another stroke, and keeping you healthy and strong! This phase I/IIA clinical trial from the University of Melbourne aims to find out how long you need to be active for each week and how hard you have to work while active to be beneficial for your health. We are looking for volunteers who are over 18 years old, have had a stroke within the past 6 months, and can walk with or without a gait aid. Health professionals will give you a personalised physical activity program and support you over 6 months. You will be given a Fitbit device to monitor and help support your physical activity.

 

Support After Stroke using group-based classeS: The SASS Study

Researchers from Monash University have developed two group-based programs to improve recovery for people living with stroke including brain connectivity and function, mood, quality of life, stress, blood pressure and blood glucose. To test these aspects, they are looking for people in south-east/eastern suburbs of Melbourne who have had a stroke in the last 3 to 12 months. The program involves a baseline health assessment, followed by a weekly 60-min class for 12 weeks.

 

Validation of the Nine Hole Peg Test administered via telehealth with stroke survivors

Are you a survivor of stroke, based in Sydney or Melbourne, with ongoing challenges using your affected hand? This study from St Vincent's Health Network will examine the administration of assessments for the hand and arm via telehealth. Participants can be seen either at home, or onsite in Auburn, Melbourne or Darlinghurst, Sydney.

 

UPLIFT trial: Integrated UPper limb and Language Impairment and Functional Training after stroke

Do you have difficulty using your arm and communicating after your stroke? The UPLIFT trial is recruiting people who are 3 to 24 months post-stroke and living in the community to test a new intensive rehabilitation program that trains arm movement and communication together. Depending on the amount of function you have, the program will be provided at home via telerehabilitation, or in person at a health clinic.

 

PERsonalised Knowledge to reduce the risk of Stroke (PERKS-International)

This study is looking for people in Melbourne (Clayton) who haven’t had a stroke, to compare two different ways of showing them their risk factors, which are things like diet, exercise and blood pressure. Knowing these lifestyle risk factors may help people to control them and reduce their risk of having a stroke. Participation will involve four online surveys and two face-to-face health checks.

 

MIDAS 2: Modafinil In Debilitating Fatigue After Stroke 2

This study is recruiting community-dwelling stroke survivors who are experiencing persistent and non-resolving fatigue 3 or more months after their stroke, to test whether modafinil significantly improves participant quality of life compared to placebo. Participants will be randomised to either modafinil (200 mg daily) or an identical placebo for 56 days.

 

Network of sites and 'up-skilled' therapists to deliver best-practice stroke rehabilitation of the upper limb

We are recruiting people with stroke who would like to participate in a therapy program that focuses on touch sensation and use of the hand. Potential participants should be adults (over 18 years of age) who have had a stroke and have altered feeling in their hand. Participants in the study will be asked to attend assessment and therapy appointments 14 times over a period of six months.

 

Improving wellbeing after acquired brain injury with a group program to enhance participation in valued activities

Have you had a stroke or acquired brain injury (ABI) that has affected how you think and feel? Are you interested in learning ways to deal with these changes so you can do more of the things you value in life? Difficulties with memory and other thinking skills, along with changes in mood, can affect the capacity to do things that are meaningful and valued, such as work, leisure and social activities. VaLiANT is an 8-week group program located at La Trobe University in Bundoora (VIC), or run via telehealth (Zoom videoconferencing) during periods of Covid-related restrictions. Adults (aged 18 years or over) who have had a stroke at least 3 months ago can participate. The program is designed to increase your participation in activities that you value while helping you learn strategies for dealing with changes in thinking and mood. You are invited to participate in our research investigating the impact of participating in the group on the lives of people with ABI.

 

Co-de Nuts: Co-designing nut intervention with post-stroke adults

This Monash University co-design study is exploring the feasibility of inclusion of nuts in daily diet for post-stroke adults.  The team hope this will provide strategies to tailor the incorporation of 30 g nuts into the daily diet of adults living with stroke, and inform the design for the next phase of the study. If you are an adult survivor of stroke, or a health professional who works with adult survivors of stroke, you're invited to take part in a 45-minute in-depth interview, via Zoom or face-to-face at Monash University Clayton Campus, VIC.

 

MedTechVic design sprint invitation for health care professionals

MedTechVic is hosting a series of workshops on behalf of Safer Care Victoria and the Australian Medtech Manufacturing Centre (AMMC), with the aim of engaging stakeholders in creative problem-solving to address complex challenges and ultimately improve health outcomes for all Australians. They are looking for healthcare professionals to draw on their experience of working in the healthcare system, to unpack key issues and ideate potential solutions.

 

Addressing cognitive changes in stroke survivors

This Monash University research project is investigating health professionals' experience and perception of how cognition is managed after stroke. Specifically, the team will explore the perceived capability, opportunity and motivation of health professionals involved in stroke care to address cognition with stroke patients/clients. Australian health professionals currently working with stroke patients are invited to complete a 50-minute interview either remotely or in person.

 

Boosting arm recovery after stroke

This study from St Vincent's Health Network Sydney is investigating the delivery of constraint induced movement therapy (CIMT) via telehealth. CIMT is a proven effective therapy for arm recovery after stroke. Participation in this study involves completing an intensive 3-week rehabilitation program with your affected arm for at least 2 hours per day, and wearing a mitt on your non-affected arm at least 6 hours per day, to encourage use of your affected arm in daily life.

 

Nut supplementation to mitigate post-stroke cognitive decline (NUT-me): a pilot study

This study from Monash University is looking for people who have had a stroke in the past 6 months to examine if eating nuts regularly reduces post-stroke cognitive decline and dementia. The research will involve you eating a mix of nuts for 90 days and attending the Be Active Sleep Eat (BASE) facility in Notting Hill, Melbourne, on four occasions to complete a few questionnaires and a series of cognitive tests.

 

HiWalk mobility booster program

Does your walking need a boost after stroke? Senior researchers from Macquarie, Monash and Sydney Universities are seeking participants to trial a physiotherapy-led program to improve walking in people after stroke. The program involves attending a rehabilitation gym for up to 3 hours, on weekdays for 3 weeks. You are eligible if you're an adult, you had a stroke more than 6 months but less than 8 years ago, you can walk 10 metres without assistance, and you have adequate English language and cognitive skills to participate.

 

Post Stroke Exercise Study (PISCES)

This Monash University study is exploring the effects of exercise on brain volume and thinking (cognition). The researchers are looking for people over 18-years-old who have had an ischaemic stroke in the past 2 months to participate in an 8-week, home-based exercise program, delivered via telehealth telehealth (live video call) using a device we will provide for you. We will also need to see you in person for an initial test including MRI scan, and at 4 months and 12 months after your stroke.

 

Fit 4 Me After Stroke

Regular physical activity is important for stroke recovery, reducing chances of another stroke, and keeping you healthy and strong! This phase I/IIA clinical trial from the University of Melbourne aims to find out how long you need to be active for each week and how hard you have to work while active to be beneficial for your health. We are looking for volunteers who are over 18 years old, have had a stroke within the past 6 months, and can walk with or without a gait aid. Health professionals will give you a personalised physical activity program and support you over 6 months. You will be given a Fitbit device to monitor and help support your physical activity.

 

Support After Stroke using group-based classeS: The SASS Study

Researchers from Monash University have developed two group-based programs to improve recovery for people living with stroke including brain connectivity and function, mood, quality of life, stress, blood pressure and blood glucose. To test these aspects, they are looking for people in south-east/eastern suburbs of Melbourne who have had a stroke in the last 3 to 12 months. The program involves a baseline health assessment, followed by a weekly 60-min class for 12 weeks.

 

Validation of the Nine Hole Peg Test administered via telehealth with stroke survivors

Are you a survivor of stroke, based in Sydney or Melbourne, with ongoing challenges using your affected hand? This study from St Vincent's Health Network will examine the administration of assessments for the hand and arm via telehealth. Participants can be seen either at home, or onsite in Auburn, Melbourne or Darlinghurst, Sydney.

 

UPLIFT trial: Integrated UPper limb and Language Impairment and Functional Training after stroke

Do you have difficulty using your arm and communicating after your stroke? The UPLIFT trial is recruiting people who are 3 to 24 months post-stroke and living in the community to test a new intensive rehabilitation program that trains arm movement and communication together. Depending on the amount of function you have, the program will be provided at home via telerehabilitation, or in person at a health clinic.

 

PERsonalised Knowledge to reduce the risk of Stroke (PERKS-International)

This study is looking for people in Melbourne (Clayton) who haven’t had a stroke, to compare two different ways of showing them their risk factors, which are things like diet, exercise and blood pressure. Knowing these lifestyle risk factors may help people to control them and reduce their risk of having a stroke. Participation will involve four online surveys and two face-to-face health checks.

 

MIDAS 2: Modafinil In Debilitating Fatigue After Stroke 2

This study is recruiting community-dwelling stroke survivors who are experiencing persistent and non-resolving fatigue 3 or more months after their stroke, to test whether modafinil significantly improves participant quality of life compared to placebo. Participants will be randomised to either modafinil (200 mg daily) or an identical placebo for 56 days.

 

Network of sites and 'up-skilled' therapists to deliver best-practice stroke rehabilitation of the upper limb

We are recruiting people with stroke who would like to participate in a therapy program that focuses on touch sensation and use of the hand. Potential participants should be adults (over 18 years of age) who have had a stroke and have altered feeling in their hand. Participants in the study will be asked to attend assessment and therapy appointments 14 times over a period of six months.

 

Improving wellbeing after acquired brain injury with a group program to enhance participation in valued activities

Have you had a stroke or acquired brain injury (ABI) that has affected how you think and feel? Are you interested in learning ways to deal with these changes so you can do more of the things you value in life? Difficulties with memory and other thinking skills, along with changes in mood, can affect the capacity to do things that are meaningful and valued, such as work, leisure and social activities. VaLiANT is an 8-week group program located at La Trobe University in Bundoora (VIC), or run via telehealth (Zoom videoconferencing) during periods of Covid-related restrictions. Adults (aged 18 years or over) who have had a stroke at least 3 months ago can participate. The program is designed to increase your participation in activities that you value while helping you learn strategies for dealing with changes in thinking and mood. You are invited to participate in our research investigating the impact of participating in the group on the lives of people with ABI.

 

UPLIFT trial: Integrated UPper limb and Language Impairment and Functional Training after stroke

Do you have difficulty using your arm and communicating after your stroke? The UPLIFT trial is recruiting people who are 3 to 24 months post-stroke and living in the community to test a new intensive rehabilitation program that trains arm movement and communication together. Depending on the amount of function you have, the program will be provided at home via telerehabilitation, or in person at a health clinic.

 

Pilot study of a group therapy program for individuals with emotion dysregulation after an acquired brain injury

Following a brain injury, there are many reasons that you may have difficulty regulating your emotions, including injury to emotion centres in the brain and/or due to the effect of major life changes you have experienced as a result of your injury. The ER-ABI group program will introduce a range of strategies to help you to better understand and regulate your emotions. The group is designed for people who have sustained an acquired brain injury in the last 24 months (at the time of commencement of the group). Each group consists of eight weekly two-hour sessions and one follow-up session.

 

MIDAS 2: Modafinil In Debilitating Fatigue After Stroke 2

This study is recruiting community-dwelling stroke survivors who are experiencing persistent and non-resolving fatigue 3 or more months after their stroke, to test whether modafinil significantly improves participant quality of life compared to placebo. Participants will be randomised to either modafinil (200 mg daily) or an identical placebo for 56 days.

 

The relationship between thinking skills and daily functioning in adults with brain injuries

The University of Western Australia is researching how thinking skills following a brain injury like stroke affect how well people can do things such as work or hobbies. Participants will need to attend the University of Western Australia in Perth to have an assessment and complete questionnaires and tests, and attend a follow-up in three months’ time. Case managers or partners will also be invited to participate. A report about how participants went can be provided on request.

 

UPLIFT trial: Integrated UPper limb and Language Impairment and Functional Training after stroke

Do you have difficulty using your arm and communicating after your stroke? The UPLIFT trial is recruiting people who are 3 to 24 months post-stroke and living in the community to test a new intensive rehabilitation program that trains arm movement and communication together. Depending on the amount of function you have, the program will be provided at home via telerehabilitation, or in person at a health clinic.

 

Pilot study of a group therapy program for individuals with emotion dysregulation after an acquired brain injury

Following a brain injury, there are many reasons that you may have difficulty regulating your emotions, including injury to emotion centres in the brain and/or due to the effect of major life changes you have experienced as a result of your injury. The ER-ABI group program will introduce a range of strategies to help you to better understand and regulate your emotions. The group is designed for people who have sustained an acquired brain injury in the last 24 months (at the time of commencement of the group). Each group consists of eight weekly two-hour sessions and one follow-up session.

 

MIDAS 2: Modafinil In Debilitating Fatigue After Stroke 2

This study is recruiting community-dwelling stroke survivors who are experiencing persistent and non-resolving fatigue 3 or more months after their stroke, to test whether modafinil significantly improves participant quality of life compared to placebo. Participants will be randomised to either modafinil (200 mg daily) or an identical placebo for 56 days.

 

The relationship between thinking skills and daily functioning in adults with brain injuries

The University of Western Australia is researching how thinking skills following a brain injury like stroke affect how well people can do things such as work or hobbies. Participants will need to attend the University of Western Australia in Perth to have an assessment and complete questionnaires and tests, and attend a follow-up in three months’ time. Case managers or partners will also be invited to participate. A report about how participants went can be provided on request.

 

Duty of care and responsibility

  1. Stroke Foundation endeavours to ensure that all engagement through our research program is undertaken ethically and in line with our guiding principles. Reasonable checks are undertaken to ensure promoted projects have appropriate approval from a recognised body.
  2. Stroke Foundation is not responsible for externally administered research and is not liable for any claims concerning negligence, harm or oversight that might arise during the course of the research.
  3. Consent to take part and any questions or concerns regarding the research should be initially directed to the research team contacts provided.
  4. Stroke Foundation retains the right to remove listings/postings that do not meet the requisite criteria, and/or if complaints are received concerning the research project.

Do you have a research project? Request participants