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What is the Childhood Stroke Project?

The Childhood Stroke Project will deliver new information resources to support survivors of childhood stroke, their families, carers and friends. This could include videos, podcasts, guides, checklists, planners and learning modules.

The Childhood Stroke Project will build on previous Stroke Foundation work such as Our Family’s Stroke Journey.

We want to ensure families of children with stroke have what they need to manage their family’s health and wellbeing, and to achieve the best possible recovery for their child.

 

How will we work together?

The Childhood Stroke Lived Experience Advisory Group is a group made up of survivors of childhood stroke, family members and carers. This group, along with the Stroke Foundation project team, will help plan the project, keep it on track, and deliver new resources and childhood stroke activities.

We also want the broader childhood stroke community to be involved.

 

How can you get involved?

We would like to hear about the resources you want and how you want them delivered.

If you are a survivor of childhood stroke, a family member or carer, please join us.

You can choose how involved you want to be. You can receive updates, take part in surveys, interviews, workshops and give feedback.

Researchers, health professionals and service providers are also invited to register.

Register below to receive project updates and get involved.

Your privacy: We are collecting your details so we can provide you with information about Stroke Foundation’s Childhood Stroke Project. We will not use your information for any other purpose. Read more about Stroke Foundation’s privacy policy.

To make sure you receive our updates add childhoodstroke@strokefoundation.org.au to your email address book.

Tell us about the resources we should create - Complete our survey

Register to get involved



Further information

Our work in childhood stroke is generously supported by the Barr Family Foundation.

For further information about the project, contact Mardee:

  • Mardee

    Childhood Stroke Project Coordinator

    Email: childhoodstroke@strokefoundation.org.au

  • StrokeLine

    StrokeLine's health professionals provide information and advice on stroke treatment, prevention and recovery.  It's free and confidential.  StrokeLine is available Monday to Friday 9am to 5pm, Eastern Standard Time (closed on Australian national public holidays).

    Phone: 1800 787 653

    Email: strokeline@strokefoundation.org.au