There are an estimated 142,000 Australians aged 18 to 65 living with the impact of stroke.
For the first time the Stroke Foundation has partnered with the young stroke community and together we have designed the Stroke Foundation's Young Stroke Website to connect young survivors of stroke, family and friends with resources created by people who ‘get it’.
The Young Stroke Website has been developed through Stroke Foundation’s Young Stroke Project, a three-year project funded by the Australian Government Department of Social Services.
Stroke survivor Paul, age 42 was an active father of two running his own IT business. Paul suffered a major stroke on the 10th of April 2018. Paul's work colleague was with him at the time of his stroke, recognised the signs of stroke and got him to hospital quickly.
“I am one of the lucky ones. In some senses I won the stroke lottery. Very fortunately, I had one of my employees, Alex, with me in the passenger seat. When I told him what was happening, he insisted I pull over so he could drive. He literally saved my life as he took me to a doctor's surgery," Paul said.
Paul recalled the lack of age appropriate information available to him during his recovery in hospital and later rehabilitation. Paul is one of many younger survivors who highlight the gap in resources for working age stroke survivors.
"The availability of general information aimed at my demographic was lacking. A lot of the advice I received was around learning to “pace” myself. I had a son under five and a new-born baby, pacing was not really an option. Many of the resources seemed to be aimed at those in their retirement years, even the photos on pamphlets. I didn’t want to retire! I was just getting going!"
Paul hopes with his involvement in the project he will be able to share his experience and make the stroke journey better for others.