April marked 27 years since my stroke - a big milestone
By Jan
Sunday, April 6th marked 27 years since I had my stroke - a big milestone in my life.
My recovery has been slow, but I’m still improving. I still struggle with my words sometimes, but I keep learning. I won’t give up, staying positive is something I focus on every single day.
One of the most important things I’ve learned through all these years, especially through volunteering and being part of my community — is the power of communication. Learning how to help others understand me, and how to express myself clearly, has made a world of difference.
It took me around three years before I could get my words out properly. In the beginning, I couldn’t finish a sentence. It was frustrating, and there were many tears. Even now, I still struggle with some words — but I’ve come a long way, and I’m proud of that.
Early on, I turned to volunteering and that became my rehabilitation. I’ve been involved in so many projects over the years, and these roles helped me find purpose and connection. They weren’t just 'volunteering' they were a huge part of my healing.
How to volunteer with Stroke Foundation.
Because of the emotional and physical challenges of stroke, I also started participating in stroke research to see if that could help me. I have been involved in several projects, but right now I’m part of a study called CAPTURE. It focuses on limb recovery, things like lifting your arm, using your fingers, or working with curled toes and tight muscles.
Being part of research has been a meaningful way to stay connected and keep learning. It gives me something to work toward to, and it also helps others.
Here are a few tips from my journey
Your brain needs time. Sometimes it feels like you hit a plateau - and that’s okay. Rest. Be kind to yourself.
Keep a “safe box” at home. I use mine for keys, paperwork, hospital letters, GP notes - anything important. It saves time and stress.
Carry a small card that says: “I had a stroke which makes it difficult to speak, read, and write. Please be patient and give me time to communicate.”
This has helped me so much in public spaces.
I want other people impacted by stroke to know that you’re not alone. Getting involved, whether it’s volunteering, research, or community activities can make a huge difference. You’ll find purpose, support, and connection. And you’ll help others by simply showing up and sharing your experience.
Thanks for reading. And thank you for walking this path with me. Together, we stay strong.
