Turning lived experience into advocacy

Becoming a stroke advocate has been one of the most powerful and purposeful decisions of my life. Since experiencing a significant Left Lacunar Stroke in 2016, I’ve found deep meaning in transforming that experience into action by helping to shape research, guide service delivery, and inspire the next generation of health professionals. 

My advocacy began with a single invitation to speak to student clinicians at Australian Catholic University, thanks to Associate Professor Simone Dorsch. That first lecture lit a spark. Since then, I’ve had the privilege of sharing my story and insights with over 2,000 students across institutions like Newcastle University (thanks to Professor Coralie English and Dr. Dawn Simpson), the University of East Anglia (via my work with The George Institute for Global Health), and soon, Macquarie University. 

What began as a conversation with future allied health professionals has grown into a lasting contribution to stroke education, policy, and care. 

Advocacy isn’t just about awareness; it’s about influence. It’s about bringing the real-world perspective of stroke into classrooms, research studies, advisory panels, and peer communities. It’s about being part of the solution. 

For me, advocacy is also deeply personal. It’s how I give back. It’s how I honour what I’ve been through and help shape a better path for those yet to come. 

If you have experienced stroke - your voice matters. More than that, it’s needed. Whether you: 

• Join research projects to help improve stroke recovery and prevention 
• Participate in advisory panels to inform healthcare design 
• Share your insights through platforms like EnableMe 
• Or connect with others through the Stroke Foundation’s Young Stroke program 

You are making a difference. 

As I often say:

“Your knowledge and insights will be welcomed, respected, and valued.” 

If you’re curious about becoming an advocate, I encourage you to reach out to the Stroke Foundation.

And if you'd like to follow my journey and learn about opportunities to get involved, you can read more on my blog on EnableMe. 

Let’s create change together.