Request for research participant policy
Stroke Foundation role in recruitment to research
Stroke Foundation recognises the value of all levels of research and the welfare and experiences of those affected. Likewise, the Stroke Foundation recognises that many people, such as those affected by stroke or clinicians working with stroke survivors, are interested in research and want to be involved in research projects relevant to them.
Stroke Foundation may endeavour to assist with the recruitment of participants to take part in the design and execution phases of research projects and studies, however Stroke Foundation cannot guarantee that participants will be available.
All requests for Stroke Foundation to assist with the recruitment of participants for research projects must be made on the appropriate application form. Requests for participants required in the execution of a study must be accompanied by a copy of ethics approval for the study and participant information sheet. Only applications seeking assistance with study design can be considered by the Stroke Foundation prior to ethics approval.
Stroke Foundation is committed to providing researchers undertaking stroke-related projects equal opportunity to access those affected by stroke. Promotion of approved applications will be through mechanisms deemed appropriate by Stroke Foundation which may include social media and online forums, through our website, membership database (StrokeConnect and Stroke Support Groups) and health professional networks.
Stroke Foundation retains the right to remove listings/postings that do not meet the agreed criteria, and/or if complaints are received concerning the research project.
Stroke Foundation has developed the below set of criteria to assess applications:
- Aims and purpose of the research: the research must support the Stroke Foundation’s vision of “a world free from disability and suffering caused by stroke”. It must have the potential to lead to benefits to people living with, or at risk of stroke. The outcomes should be relevant to stroke survivors and carers. This includes research which:
- Aims to improve the quality of life for stroke survivors and carers
- Improves stroke related health services
- Studies the causes, treatment and rehabilitation of stroke or the welfare and experiences of those affected
- Addresses stigma, discrimination and marginalisation
- Ethics approval: the project must have ethics approval from a Research Ethics Committee if the researcher is seeking participants to execute the study.
Stroke Foundation will assess and notify applicants of the outcome within two weeks.
- Posted link(s), etiquette and guidance is provided to researchers whose studies are posted on EnableMe.
Acknowledgements by researchers
All researchers that receive help from Stroke Foundation recruiting research participants are asked to:
Acknowledge that Stroke Foundation takes no responsibility for the research and is not liable for any claims concerning negligence, harm or oversight that might arise during the course of the research.
Acknowledge that providing the researchers with access to potential participants, does not represent Stroke Foundation’s endorsement of, or participation in, the research project.
Note that Stroke Foundation publishes the following disclaimer on its webpage that lists research project participation opportunities:
Stroke Foundation recognises the value of all levels of research and the welfare and experiences of those affected. The Stroke Foundation is not responsible for, and does not endorse, any research project, opportunity, or other type of project listed. Reasonable attempts have been made to ensure projects listed have appropriate approval from a recognised body. Participants are responsible for satisfying themselves that appropriate approval procedures have been met before taking part. Participants are advised to read the participant information sheet that the researcher will provide to you. If you do agree to participate and/or you have any concerns regarding the project, these should be directed to the researcher or other contacts on the participant information sheet.