Experiences of people with lived experience of stroke attending and presenting at national stroke conferences in Australia
Who it’s for: Survivors of stroke, family members or carers
What it involves: Interview
Location: Online (Australia)
Summary
Researchers from Flinders University invite people with lived experience of stroke to share about their experiences of being included in stroke conferences.
This study aims to:
- Understand the experiences of people with lived experience of stroke who attend or present at stroke conferences
- Explore the benefits and challenges of being involved in these events
- Find out how conferences can better support and include people with lived experience in the future.
Eligibility
- Have lived experience of stroke (as a survivor or a carer/supporter)
- Have attended online or in-person, presented at, or helped organise a stroke conference in Australia between 2023 and 2025 (e.g., Smart Strokes, Stroke Forum, Asia-Pacific Stroke Conference, etc.)
- Are aged 18 years or older.
Activity
- A one-on-one online interview (via Microsoft Teams).
- The interview will take about 45–60 minutes and will be scheduled at a time that suits you.
- You’ll be asked about your experience, expectations and thoughts on being involved in stroke conferences.
Saran Chamberlain from Flinders University will conduct the interviews as part of her Honours research. Watch this short video to learn more about Saran and the project:
Documents
Participant information sheet [DOCX 173 KB]
Contact
Saran Chamberlain
Email: saran.chamberlain@flinders.edu.au