Measuring meaningful changes in aphasia care
Who it’s for: Survivors of stroke, family members or carers
What it involves: Interviews, survey, test a method
Location: Online (Australia)
Summary
Health professionals use aphasia tests before and after treatment to understand if the treatment is working. Outcomes are measured in four (4) important areas:
- Language
- Communication
- Quality of life, and
- Emotional wellbeing.
This study led by The University of Queensland is looking at which test scores represent a meaningful change to people with aphasia.
The goal is to make sure aphasia test results are understood in a way that reflects the perspective of people with aphasia, and improve aphasia care.
In this study, people with aphasia after stroke are asked:
- "how much change have you had?"
- "did this change feel like an important change?"
Eligibility
- Have aphasia after a stroke less than one year ago
- Living in Australia
- Aged at least 18 years
- Able to access the Internet.
Activity
- Participate in three (3) online meetings.
- Participation will take a total of 6 hours over a 2-month period.
- Complete aphasia tests and rate your change.
- Share some information about you, your aphasia, and your treatment.
- Nominate a significant other (family member, friend, or carer) who you often communicate with. Your significant other will complete a questionnaire about your communication in everyday activities.
- For people living in Brisbane or the Sunshine Coast, there is an option for in-home visits.
Find out more information, or submit an expression of interest
Documents
Participant information sheet [PDF 2.48 MB]
Contact
Dr Sally Zingelman
Queensland Aphasia Research Centre
Phone: 07 3346 7453
Email: aphasia.measures@uq.edu.au