Connecting researchers and people with lived experience of stroke

Stroke Foundation and the Centre of Research Excellence to Accelerate Stroke Trial Innovation & Translation (CRE) have partnered to pilot a Lived Experience Research Panel. 

The panel connects stroke researchers with people with lived experience of stroke to provide early input into research design. It aims to support respectful and accessible engagement and help make research more relevant, clear and feasible. 

What can the Panel help with? 

The Panel is suitable for researcher’s seeking feedback on:​ 

• research priorities and questions​ 

• grant applications​ 

• study design and feasibility​ 

• participant information and recruitment strategies​ 
• language and framing of research​ 

How does it work? 

Researchers can request a 60-90 minute online panel discussion by completing the Lived Experience Research Panel request form.  

Stroke Foundation coordinates:​ 

• recruitment to the panel​ 

• accessibility support​ 

• meeting logistics​ 

• communication with people with lived experience​ 
• contribution fee payments​ 

Researchers will be expected to: 

• provide panel participants questions and research information in plain language in advance​.  
• Complete our co-designed e-learning module on how to  Work effectively with people with lived experience 

Remuneration and funding 

Panel participants are paid for their time and expertise, in line with Stroke Foundation policy. 

A limited number of funded panel discussions are available to early career researchers who are CRE Affiliates.